Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Africa FocusGoogle News — AlbinismHuman Rights Watch documents violence against Malawians with albinism
A new Human Rights Watch report details killings, attacks, and discrimination facing people with albinism in Malawi, where harmful beliefs drive demand for body parts.
Health & Sun ProtectionGoogle News — AlbinismA case report reframes mild OCA1B in dermatology
A new case report in Cureus examines oculocutaneous albinism type 1B, where skin findings are subtle enough to delay or complicate diagnosis.
Health & Sun ProtectionGoogle News — AlbinismKenya offers free cancer screening to people with albinism
A skin cancer screening initiative in Kenya is giving people with albinism access to free dermatological checks, addressing one of the community's most pressing health needs.
Africa FocusGoogle News — AlbinismA grandmother's words, and one girl's life after
A New York Times opinion piece follows a young girl with albinism whose grandmother called for her death at birth. Her story reflects a pattern of family rejection documented across Sub-Saharan Africa.
Health & Sun ProtectionGoogle News — AlbinismAlbinism treatment market projected to reach $439 million
A new market report projects the global albinism drug market will reach USD 439 million by 2035, signalling growing pharmaceutical interest in the condition.
Human RightsGoogle News — AlbinismA family marks World Albinism Awareness Day
Ahead of 13 June, one family stepped forward to raise public awareness about albinism. Their image is now available through Reuters Connect.
Human RightsGoogle News — AlbinismAttacked in Africa, fitted with prosthetics in New Jersey
Survivors of ritual attacks on people with albinism in Africa have received prosthetic limbs through a programme in New Jersey. The fittings mark one step in a longer recovery.
Africa FocusGoogle News — AlbinismUNESCO strengthens albinism rights work in Zimbabwe
UNESCO and partner organisations met in Zimbabwe to coordinate efforts protecting the rights of people with albinism. The collaboration focuses on reducing discrimination and improving access to services.
Health & Sun ProtectionGoogle News — AlbinismNew research maps how OCA2 loss disrupts pigment production
A study published on ScienceDirect identifies a cellular mechanism linking OCA2 gene deficiency to reduced melanin, with implications for albinism research.
Health & Sun ProtectionGoogle News — AlbinismCuba's Holguín builds local support for people with albinism
A provincial programme in Holguín is combining medical care, legal protection, and community education to support people with albinism across Cuba.
Health & Sun ProtectionGoogle News — AlbinismWhat The Hindu's albinism explainer gets right
The Hindu published a detailed primer on albinism, covering genetics, vision, skin risk, and the social challenges faced by people with the condition.
Human RightsGoogle News — AlbinismHRW report finds deep economic exclusion in Malawi
A Human Rights Watch report documents how people with albinism in Malawi face barriers to employment, education, and basic services. The findings call for urgent government action.
Health & Sun ProtectionGoogle News — AlbinismWHO adds sunscreen for albinism to essential medicines list
The World Health Organization has added high-SPF sunscreen to its Essential Medicines List, recognising UV protection as a medical necessity for people with albinism.
Real StoriesGoogle News — AlbinismOscar-shortlisted film centres a boy with albinism
Simon Panay's 'The Boy With White Skin' reached the Oscar shortlist by weaving albinism awareness into a story shaped by mysticism and lived experience.
Health & Sun ProtectionGoogle News — AlbinismCataract surgery offers new option for oculocutaneous albinism
A case study published in Via Medica Journals examines standard lens implant surgery as a practical alternative for people with oculocutaneous albinism.
Real StoriesGoogle News — AlbinismShaiboy on Afrobeats, albinism, and working twice as hard
Nigerian artist Shaiboy speaks about navigating the music industry with albinism, and what it takes to build a career on his own terms.
Real StoriesGoogle News — AlbinismAderopo Afolabi uses photography to reframe albinism
Nigerian photographer Aderopo Afolabi is using portraiture to challenge how albinism is seen and represented in West Africa.
Human RightsGoogle News — AlbinismNigeria's millions with albinism remain largely invisible
An estimated two million Nigerians live with albinism, yet many face daily discrimination, limited healthcare access, and social exclusion. LEADERSHIP Newspapers reports.
Health & Sun ProtectionGoogle News — AlbinismCRISPR gene editing accidentally triggers albinism in sugarcane
Researchers found that CRISPR/Cas9 editing caused unintended albinism in sugarcane plants by disrupting a pigmentation gene. The finding highlights a precision problem with a widely used genetic tool.
Human RightsGoogle News — AlbinismJune 13: International Albinism Awareness Day observed globally
Each year on June 13, communities around the world mark International Albinism Awareness Day, established by the United Nations in 2015.