Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Education & InclusionGoogle News — AlbinismEnsign Global University marks Albinism Awareness Day
The Ghanaian university held an event to mark International Albinism Awareness Day, joining global efforts to build understanding of albinism.
Human RightsGoogle News — AlbinismSouth Africa calls communities to end albinism discrimination
The Department of Social Development marked Albinism Awareness Day by urging South Africans to challenge discrimination in their own communities. The call came ahead of International Albinism Awareness Day on 13 June.
Human RightsGoogle News — AlbinismPeople with albinism push for public sector jobs in Uganda
Advocates in Uganda are calling on the government to open more public sector roles to people with albinism, citing persistent exclusion from formal employment.
Health & Sun ProtectionGoogle News — AlbinismNigeria launches skin cancer screening for people with albinism
NICRAT has opened dedicated skin cancer screening at three centres across Nigeria, targeting a community at significantly higher risk from UV exposure.
Health & Sun ProtectionGoogle News — AlbinismLiving with albinism in the Balkans
A person with albinism in the Balkans describes sun exposure that causes bleeding skin and the daily experience of social avoidance. Their account surfaces a community rarely heard from.
Human RightsGoogle News — AlbinismNigeria launches campaign to promote albinism dignity
A new campaign in Nigeria aims to challenge discrimination and affirm the rights of people with albinism. Details remain limited but the initiative marks a public step toward visibility.
Health & Sun ProtectionGoogle News — AlbinismSanlamAllianz donates 3,900 sun hats in Namibia
The insurer distributed sun hats to people with albinism across Namibia, addressing a gap in everyday UV protection for a community at high skin cancer risk.
Africa FocusGoogle News — AlbinismEswatini's cultural leaders take on albinism discrimination
Traditional leaders in Eswatini are actively challenging the beliefs that put people with albinism at risk. A new analysis examines what that leadership looks like in practice.
Human RightsGoogle News — AlbinismNigerians with albinism call for inclusion, not pity
Activists and community members in Nigeria are pushing for structural change — access, representation, and dignity — over charitable sympathy.
Health & Sun ProtectionGoogle News — AlbinismAbuja outreach brings care to people with albinism
The Albinism Association of Nigeria called for sustained support as a medical outreach in Abuja provided health services to the local albinism community.
Human RightsGoogle News — AlbinismAttacked in Africa, fitted with prosthetics in New Jersey
People with albinism who lost limbs in ritual attacks across sub-Saharan Africa have received prosthetic arms through a New Jersey-based programme.
Health & Sun ProtectionGoogle News — AlbinismA new OCA2 mutation identified in genetic case report
Researchers have documented a previously unreported genetic mutation linked to oculocutaneous albinism type 2, adding detail to how OCA2 is understood at the molecular level.
Africa FocusGoogle News — AlbinismTanzania sets aside Sh1.9bn for albinism skin oil
The Tanzanian government has allocated 1.9 billion shillings for protective skin oil for people with albinism, alongside new oversight measures.
Education & InclusionAllAfrica — AlbinismUganda health experts warn against traditional remedy delays
In Ntungamo District, health experts say families turning to traditional remedies for misdiagnosed conditions are causing avoidable child deaths.
Africa FocusAllAfrica — AlbinismMalawi's water and sanitation reforms stall under funding pressure
Senior officials warn Malawi must move faster on water and sanitation targets. People with albinism, who depend on clean water for sun protection routines, face compounded risk.
Health & Sun ProtectionGoogle News — AlbinismFiji moves to improve care for people with albinism
The Fiji Times reports on new efforts to strengthen health services for people with albinism in the Pacific island nation.
Human RightsGoogle News — AlbinismUN calls for essential healthcare for Zimbabweans with albinism
The United Nations has demanded that Zimbabwe ensure people with albinism can access basic healthcare, raising concern over persistent gaps in provision.
Human RightsGoogle News — AlbinismAfrican court holds Tanzania responsible for albinism attacks
The African Court on Human and Peoples' Rights has ruled Tanzania violated the rights of people with albinism. The decision marks a significant moment in regional human rights accountability.
Health & Sun ProtectionGoogle News — AlbinismWHO calls sunscreen life-saving for people with albinism
The World Health Organization has declared sunscreen essential, not optional, for people with albinism — and is calling for equitable global access.
Africa FocusGoogle News — AlbinismHRW report documents violence against Malawians with albinism
A new Human Rights Watch report finds that people with albinism in Malawi continue to face killings, abductions, and systematic discrimination. The findings call for urgent government action.