Archive
Human Rights
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Human RightsAmerican Journal of Human GeneticsResearchers map every possible AIRE protein variant
A new study has catalogued the effect of every amino acid change in the AIRE protein, offering a tool that could improve diagnosis of rare autoimmune conditions.
Human RightsAllAfrica — AlbinismHow inequality shapes pandemic risk for vulnerable communities
Structural inequality doesn't just worsen health crises — it creates the conditions that allow them to spread. People with albinism face compounding barriers when systems fail.
Human RightsAllAfrica — AlbinismPEPFAR cuts leave South Africa without a clear plan
The withdrawal of US PEPFAR funding has prompted urgent questions about HIV treatment continuity for vulnerable communities, including people with albinism.
Human RightsOHCHR — Independent Expert on AlbinismUN expert maps the global state of albinism rights
The OHCHR's Independent Expert on Albinism tracks discrimination, violence, and exclusion facing people with albinism across the world.
Human RightsOHCHR — Independent Expert on AlbinismGrace Mumbi Ngugi speaks for herself at the UN
The UN Office of the High Commissioner for Human Rights has published a profile of Grace Mumbi Ngugi, a person with albinism featured in its advocacy series.
Human RightsOHCHR — Independent Expert on AlbinismUN adopts declaration to protect people with albinism
The UN's Independent Expert on Albinism has backed a formal declaration outlining protections for people with albinism worldwide. It marks a significant step in international human rights law.
Human RightsOHCHR — Independent Expert on AlbinismUN report maps rights of people with albinism who migrate
A UN expert's report finds that people with albinism face compounded risks when they migrate, including reduced access to sun protection and heightened exposure to violence.
Human RightsOHCHR — Independent Expert on AlbinismUN reviews Uganda's record on albinism protections
The UN's Universal Periodic Review examined how Uganda is protecting the rights of people with albinism. Key concerns remain unresolved.
Human RightsOHCHR — Independent Expert on AlbinismUN human rights office publishes albinism community stories
The OHCHR Independent Expert on Albinism has gathered firsthand accounts from people with albinism around the world. The collection documents lived experience across health, safety, and belonging.
Human RightsOHCHR — Independent Expert on AlbinismUN expert calls for inputs on Madagascar albinism mission
The UN Independent Expert on albinism visited Madagascar in late September 2022, gathering evidence on the rights of people with albinism there.
Human RightsOHCHR — Independent Expert on AlbinismBrigitte Alfred speaks for herself at the UN
The UN Human Rights office features Brigitte Alfred, a person with albinism sharing her own story in her own words.
Human RightsOHCHR — Independent Expert on AlbinismUN expert: albinism rights still face systemic barriers
The UN Independent Expert on Albinism says people with albinism continue to face conditions that prevent them from fully enjoying their human rights.
Human RightsOHCHR — Independent Expert on AlbinismUN names its champions of the albinism cause
The Office of the UN High Commissioner for Human Rights has recognised a group of individuals working to protect the rights of people with albinism worldwide.
Human RightsOHCHR — Independent Expert on AlbinismUN marks first International Albinism Awareness Day
The United Nations used its first-ever International Albinism Awareness Day to call attention to the discrimination, violence, and social exclusion faced by people with albinism worldwide.
Human RightsOHCHR — Independent Expert on AlbinismUN expert on albinism to visit Pakistan in 2026
The UN Independent Expert on albinism will conduct an official visit to Pakistan from 3 to 12 June 2026, gathering testimony ahead of a formal human rights report.
Human RightsOHCHR — Independent Expert on AlbinismUN expert: people with albinism are not ghosts
The UN Independent Expert on Albinism has called for an end to dehumanising beliefs that treat people with albinism as supernatural. The statement urges recognition of full personhood and legal protection.
Human RightsOHCHR — Independent Expert on AlbinismUN issues reporting guide for children with albinism
The OHCHR Independent Expert on Albinism has released a guiding note on how journalists and organisations should report on children with albinism in Africa.
Human RightsOHCHR — Independent Expert on AlbinismOHCHR lists 27 communications on albinism rights
The UN human rights office has recorded 27 formal communications related to albinism. The cases span multiple countries and reflect ongoing concerns raised by the Independent Expert on Albinism.
Human RightsOHCHR — Independent Expert on AlbinismUN report documents children with albinism in Gambia
A joint submission to the UN Committee on the Rights of the Child outlines the specific risks facing children with albinism in The Gambia.
Human RightsOHCHR — Independent Expert on AlbinismMeet the UN's Independent Expert on albinism rights
Muluka-Anne Miti-Drummond holds the UN mandate dedicated to the human rights of people with albinism worldwide. Her role shapes international policy on the issue.