Voices · in their own words

We are not rare. We are not alone.

Personal stories from people with albinism — their challenges, what helped, and how they see the world. Published in their first language, then translated with care.

Carolina Khaskelis conducting an interview with a member of the albinism community in Zambia

Carolina Khaskelis listening to personal experiences during an interview in Zambia

Carolina Khaskelis sharing sunscreen with community members during an interview in Zambia

Carolina Khaskelis connecting with people in the albinism community in Zambia

In-person interviews conducted by Carolina Khaskelis in Zambia, highlighting the voices and experiences of people living with albinism. Scroll down to explore more interviews and learn about the people behind each story.

Featured voice

Robin Gittens

Canada

Robin Gittens is a poet and writer from Barbados now living in Canada. Living with albinism, he writes poetry rooted in identity, resilience, and self-acceptance, transforming personal experience into stories that encourage understanding and hope. He is currently working on a poetry manuscript exploring albinism, heritage, and healing. Visit his website: robinagittens.com

Read Robin’s story

All voices

3 stories

John Chiti

3 stories

Zambia

Zambian musician John Chiti shares his journey from childhood rejection and bullying to recording his first album at 17, inspiring the Netflix hit "Can You See Us?".

Gift Sakala

3 stories

Zambia

Gift Sakala is a Zambian advocate, psychosocial counselor, and leader in the albinism community. Drawing from her own experiences growing up with albinism, she works to raise awareness about discrimination, accessibility, safety, and equal opportunities for people with albinism. She has represented these issues internationally, including at the United Nations Human Rights Council, while continuing to support and empower others through her advocacy.