About
A reading place, edited by people.
Voices of People with Albinism is an independent editorial project. We summarise public stories about albinism from verified sources and retell them with dignity, in plain language. Every piece is reviewed by a human editor before it is published.
Founder
Carolina Khaskelis
Founder of the Project
This project was founded out of a deep personal commitment to raising awareness, debunking harmful myths, and protecting the lives of people with albinism. Our goal is to create a careful, dignity-first reading place that honors the real stories and voices of this global community.
01 · Mission
Our mission is to foster global albinism awareness by telling careful, human-first stories that center the lived experiences of people with albinism.
The internet already has clinical encyclopedias and sensationalized news. We aim to do something different: dispel harmful myths, advocate for fundamental human rights, and build a secure space that does not flatten the people inside it. We believe visibility is the first step toward true inclusion.
02 · What we do
We monitor a curated list of trusted sources — human rights organisations, research bodies, advocacy groups, and community media. Stories are gathered from verified sources and retold in plain language by our editorial team, using AI-assisted summarisation.
Every published article links back to the original reporting. Facts and findings belong to their original authors; we do not claim authorship of the underlying reporting.
03 · Principles
- 01
Human-first language
“Person with albinism”, never “albino” as a noun. We say the person before the condition.
- 02
Every fact, attributed
Findings, statistics and quotes are traced to their source. Our voice is in the framing, never in the data.
- 03
A human reviews everything
Sensitive stories — violence, children, medical detail — require a second pair of human eyes before publication.
- 04
No advertising, no affiliate links
We accept donations routed directly to verified partner charities. Nothing else.
04 · Editors
Founded and edited by a small team that genuinely cares about this community. Full bios coming as we grow.
Interested in writing, translating, or partnering? See how to get involved, or send us a message.