Archive
Real Stories
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Real StoriesOHCHR — Independent Expert on AlbinismDr Murray Brilliant on living with albinism and science
Geneticist Dr Murray Brilliant has spent decades studying pigmentation — and has albinism himself. The UN's Independent Expert profile offers a rare self-portrait.
Real StoriesOHCHR — Independent Expert on AlbinismA pharmacist in Chile lives with albinism on her terms
Mafalda Soto Valdés works as a pharmacist in Chile. Her account, published by the UN Independent Expert on Albinism, describes the daily adjustments her condition requires.
Real StoriesOHCHR — Independent Expert on AlbinismDavid Brodbeck shares his life with albinism
The UN Human Rights office profiles David Brodbeck, a person with albinism whose story is part of a broader effort to document real lives within the global community.
Real StoriesGoogle News — AlbinismOscar-shortlisted film centres a boy with albinism
Simon Panay's 'The Boy With White Skin' reached the Oscar shortlist by weaving albinism awareness into a story shaped by mysticism and lived experience.
Real StoriesGoogle News — AlbinismShaiboy on Afrobeats, albinism, and working twice as hard
Nigerian artist Shaiboy speaks about navigating the music industry with albinism, and what it takes to build a career on his own terms.
Real StoriesGoogle News — AlbinismAderopo Afolabi uses photography to reframe albinism
Nigerian photographer Aderopo Afolabi is using portraiture to challenge how albinism is seen and represented in West Africa.
Real StoriesGoogle News — AlbinismNigeria hosts its first pageant for people with albinism
A new pageant in Nigeria centres people with albinism in a national conversation about beauty and representation. The event is reported to be the first of its kind in the country.
Real StoriesGoogle News — AlbinismDaniella Boima Garrick wins first Miss Albinism Africa
The Sierra Leonean contestant took the inaugural title at a pan-African pageant created to celebrate women with albinism on their own terms.
Real StoriesGoogle News — AlbinismA family speaks ahead of World Albinism Awareness Day
As World Albinism Awareness Day approaches on 13 June, one family is sharing their experience to help correct misconceptions about the condition.
Real StoriesGoogle News — AlbinismA diagnosis of one in 20,000
A family in the Australian Border region shares what it means to raise a child with albinism — from the first diagnosis to daily life.
Real StoriesGoogle News — AlbinismXueli Abbing, from orphanage to Vogue's pages
Born with albinism and left at a Chinese orphanage, Xueli Abbing is now an international model and advocate working with Vogue and UNICEF.
Real StoriesReuters Health (Albinism via Google News)Beauty Pageant Celebrates and Affirms Dignity of People with Albinism
A special pageant is helping people with albinism reclaim their dignity and challenge stereotypes through celebration of beauty in diversity.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Living Independently with Albinism: Musician Ben Shares His Journey
Ben, a drummer pursuing a professional music degree, opens up about independent living, navigating challenges, and finding humor in daily experiences with albinism.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Teaching with Albinism: Deputy Head Teacher Shares His Inspiring Journey
Adam, a UK deputy head teacher and Paralympian with albinism, discusses his educational career, goalball achievements, and unique classroom insights.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Finding Self-Acceptance and Global Success: Luke's Journey with Albinism
From feeling different to designing cruise ships worldwide, Luke shares his inspiring story of self-acceptance and career success as a person with albinism.
Real StoriesReuters Health (Albinism via Google News)From Refugee to Olympian: Spanish Athlete with Albinism Competes for Paris Gold
After fleeing persecution in Mali, an athlete with albinism finds success and Olympic aspirations representing Spain on the international stage.
Real StoriesReuters Health (Albinism via Google News)Photographer Yara Nardi Documents Albinism Community Through Lens of Dignity
Reuters photographer Yara Nardi has created a visual documentary highlighting the lives and experiences of people with albinism with respect and authenticity.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Finding Self-Acceptance: Jenny Bovard Shares Her Journey with Albinism
The Albinism Life podcast features Jenny Bovard from Canada discussing her path to self-acceptance and experiences living with albinism.
Real StoriesGoogle News — Albinism"It Felt Like A Punishment": Living with Albinism in Tanzania
A deeply personal account of growing up with albinism in Tanzania reveals ongoing challenges despite progress in human rights protections.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Finding Belonging: The Power of Friendship and Representation for People with Albinism
Sara discusses the importance of seeing others like herself and how meaningful friendships within the albinism community can create powerful support systems.