Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Reveals How Skin Architecture Influences Cell Behavior in Albinism
Study examining tissue structures may provide insights into how skin and oral mucosa organize cells differently in people with albinism.
Human RightsGoogle News — AlbinismUN Calls for Global Solidarity with Persons with Albinism on International Awareness Day
The United Nations highlights the importance of recognition, celebration, and solidarity with persons with albinism worldwide.
Human RightsGoogle News — AlbinismUrgent Action Needed: The Trade in Body Parts of People with Albinism Continues
Dangerous myths and insufficient international response fuel the ongoing human rights crisis affecting people with albinism in parts of Africa.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert Seeks Global Input on Employment Rights for People with Albinism
The UN Independent Expert on Albinism launches a call for input on employment barriers and best practices to promote workplace inclusion and equality.
Human RightsOHCHR — Independent Expert on AlbinismUN Experts: Armed Conflicts Threaten Rights of Persons with Albinism and Other Disabilities
UN Independent Expert on Albinism joins other experts in highlighting heightened vulnerabilities of persons with disabilities during armed conflicts.
Human RightsOHCHR — Independent Expert on AlbinismWitchcraft-related attacks on people with albinism increased during pandemic, UN expert reports
The UN Independent Expert on Albinism has documented a concerning rise in attacks on people with albinism during COVID-19, linked to witchcraft beliefs.
Health & Sun ProtectionJournal of Investigative DermatologySkin Cell Research Routinely Overlooks Sex Differences — Why It Matters for Albinism
Medical researchers are reexamining how sex differences affect skin biology, with potential implications for albinism treatment approaches.
Health & Sun ProtectionJournal of Investigative DermatologyAdvanced Proteomics Offers New Insights into Rare Skin Disorder, May Aid Albinism Research
A breakthrough proteomics study of pachyonychia congenita reveals detailed protein changes in skin cells, potentially benefiting other genetic skin conditions.
Health & Sun ProtectionJournal of Investigative DermatologyKiwifruit Consumption Boosts Skin Vitamin C Levels, Improving Skin Health
New research shows that adding kiwifruit to your diet may naturally enhance skin vitamin C levels and improve overall skin function.
Health & Sun ProtectionAmerican Journal of Human GeneticsStudy Reveals Genetic Link Between Neurodevelopment and Health Conditions
New research shows certain genetic variants may increase risk of both mental health and heart-related conditions, with implications for comprehensive care.
Health & Sun ProtectionGoogle News — AlbinismNew Research Maps Genetic Variants in Oculocutaneous Albinism Among 28 Families
Scientists identify important genetic patterns in families with oculocutaneous albinism, including a significant deep intron variant in the TYR gene.
Health & Sun ProtectionJournal of Investigative DermatologySkin Imaging Innovations: What New Melanoma Detection Technologies Mean for Albinism Care
A review of emerging skin imaging technologies shows promise for melanoma detection, with important implications for skin health monitoring in people with albinism.
Human RightsOHCHR — Independent Expert on AlbinismUN Project Supports Human Rights Protection for People with Albinism in Mozambique
An evaluation of the OHCHR project in Mozambique reveals progress in advancing human rights protections for people with albinism amid ongoing challenges.
Human RightsOHCHR — Independent Expert on AlbinismClimate Change and Albinism: UN Experts Call for Human Rights-Centered Action at COP29
UN experts, including the Independent Expert on Albinism, urge nations at COP29 to prioritize human rights in climate policies to protect vulnerable groups.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert Completes Landmark Human Rights Assessment for People with Albinism in Panama
The UN Independent Expert on albinism conducted an official visit to Panama to evaluate human rights conditions and protections for people with albinism.
Human RightsOHCHR — Independent Expert on AlbinismUN Committee Questions Malawi on Disappearances of Persons with Albinism
The Committee on Enforced Disappearances commends Malawi for victim support services while raising concerns about missing persons with albinism.
Health & Sun ProtectionAmerican Journal of Human GeneticsNew research identifies gene linked to albinism and neurodevelopmental disorders
Scientists have discovered a gene mutation that may explain why some people with albinism also experience developmental delays and other neurological symptoms.
Health & Sun ProtectionOrphanet Journal of Rare DiseasesPhysicians' Knowledge of Albinism: Insights from Chinese Medical Study
A new study reveals important findings about physician understanding of rare conditions including albinism, highlighting both progress and areas for improvement in medical education.
Health & Sun ProtectionJournal of Investigative DermatologyNew Study Reveals Stronger Link Between Psoriatic Arthritis and Eye Inflammation
Research finds people with psoriatic arthritis may have nearly double the risk of developing uveitis, an inflammatory eye condition common in autoimmune disorders.
Human RightsOHCHR — Independent Expert on AlbinismKenya Takes Crucial Step Towards Inclusion by Counting Those Left Behind
Kenya has made significant progress by including persons with albinism in national census data, marking an important step toward greater social inclusion.