Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionGoogle News — AlbinismKenya agency offers free cancer screening for people with albinism
A state health agency ran free skin cancer screenings for people with albinism in Kenya, where sun exposure poses a significant and often unaddressed risk.
Africa FocusGoogle News — AlbinismA pageant in Zimbabwe reframes beauty on its own terms
An annual competition in Zimbabwe centres people with albinism as its focus, challenging long-held stigma in a country where misconceptions remain widespread.
Africa FocusGoogle News — AlbinismWho is targeting people with albinism in Uganda?
Attacks on people with albinism in Uganda are drawing renewed attention, as communities and activists call for stronger protections and accountability.
Human RightsGoogle News — AlbinismPakistan marks International Albinism Awareness Day
Radio Pakistan reported on the annual observance, held each June 13 to draw attention to the rights and lives of people with albinism worldwide.
Health & Sun ProtectionJournal of Investigative DermatologyRNA medicines and what they could mean for skin disease
A review in the Journal of Investigative Dermatology traces how RNA-based treatments are moving from COVID vaccines toward skin conditions including genetic diseases.
Health & Sun ProtectionJournal of Investigative DermatologyMouse skin study challenges a long-held lab assumption
A new atlas of hair follicle cycles across the whole mouse body finds that dorsal skin patches do not represent the whole animal. The finding has implications for pigmentation and skin research.
Health & Sun ProtectionAllAfrica — AlbinismSouth Africa's patent reform delay costs patients access
Twelve years after a lobbying scandal exposed pharmaceutical industry pressure, South Africa has still not passed the Patent Amendment Bill. Activists say the delay costs lives.
Human RightsAllAfrica — AlbinismUN Human Rights Council adopts resolution on neglected tropical diseases
Resolution 62/27 links neglected tropical diseases to human rights for the first time at the UN Human Rights Council level. The decision was made at the body's sixty-second session in Geneva.
Human RightsAllAfrica — AlbinismUN adopts first resolution linking NTDs and human rights
The UN Human Rights Council passed its first-ever resolution connecting neglected tropical diseases to human rights, led by a core group of African states including Malawi.
Health & Sun ProtectionAllAfrica — AlbinismCourt case reveals South Africa's fractured healthcare responsibilities
A dispute over clinic access in Johannesburg has exposed how health responsibilities are split across three tiers of government, leaving patients uncertain of their rights.
Health & Sun ProtectionJournal of Investigative DermatologyGut bacteria shape how dietary fat affects skin
A study in the Journal of Investigative Dermatology finds that fatty acid type — not total fat intake — drives skin and hair follicle changes, with gut microbiota playing a key regulatory role.
Health & Sun ProtectionJournal of Investigative DermatologyMouse study links Kit signalling to hair follicle growth
Research published in the Journal of Investigative Dermatology examines how Kit-Kitl signalling in skin cells shapes hair follicle development and regeneration.
Africa FocusAllAfrica — AlbinismMalawi minister links social media to youth mental health crisis
A government minister told parliament that social media exposes young Malawians to content promoting self-harm and suicidal thoughts. The warning raises particular concern for young people with albinism.
Africa FocusAllAfrica — AlbinismTanzania minister calls for local medicine research investment
Tanzania's education minister has urged greater investment in scientific research to develop medicines that address the country's specific health challenges.
Health & Sun ProtectionAllAfrica — AlbinismNigeria's healthcare reforms leave albinism community behind
President Tinubu's sweeping healthcare restructuring has drawn little attention to its effects on Nigerians with albinism, who depend on specific dermatological and ophthalmological services.
Health & Sun ProtectionJournal of Investigative DermatologyVisible light triggers pigmentation differently across skin types
A Journal of Investigative Dermatology study found visible light causes pigmentation in darker skin types but redness in lighter ones — a distinction relevant to albinism research.
Health & Sun ProtectionJournal of Investigative DermatologyOxidative stress study reveals potential CTCL treatment target
New research in the Journal of Investigative Dermatology identifies a distinct oxidative stress profile in cutaneous T-cell lymphoma, pointing toward a possible therapeutic vulnerability.
Human RightsAllAfrica — AlbinismSouth Africa's illegal initiation schools face renewed scrutiny
Authorities in South Africa have moved against illegal initiation schools, where people with albinism face documented risks of harm and exploitation.
Health & Sun ProtectionAllAfrica — AlbinismNigeria moves to expand cancer care funding
The Nigerian government has introduced measures to make cancer treatment more affordable, though costs remain out of reach for many patients, according to officials.
Health & Sun ProtectionJournal of Investigative DermatologyImmune checkpoint protein studied across inflammatory skin diseases
Researchers examined how a protein called VISTA behaves differently across skin conditions. The findings may point toward new treatment strategies for chronic inflammation.