Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Africa FocusGoogle News — AlbinismDiscrimination against people with albinism persists in Malawi
A new report documents continued discrimination facing people with albinism in Malawi, across education, healthcare, and daily life.
Health & Sun ProtectionGoogle News — AlbinismHuman Rights Watch calls for sunscreen access for albinism
Human Rights Watch has published a report calling for guaranteed access to sun protection for people with albinism. Lack of sunscreen raises significant skin cancer risk.
Human RightsGoogle News — AlbinismA Nigerian man with albinism deported from the US
Emeka Eze sought asylum in the United States citing targeted violence linked to his albinism. He was deported under the Trump administration's asylum restrictions.
Health & Sun ProtectionPubMed — Albinism ResearchA new OCA2 mutation identified in genetic case report
Researchers have documented a previously unreported genetic mutation linked to oculocutaneous albinism type 2, adding to the known map of OCA2 variants.
Human RightsOHCHR — Independent Expert on AlbinismUN expert urges Fiji to protect people with albinism
The UN Independent Expert on Albinism called on Fiji to take immediate action to address discrimination and social exclusion facing people with albinism in the Pacific nation.
Health & Sun ProtectionAllAfrica — AlbinismNigeria launches N50 million cancer patient support fund
The Nigerian federal government has established a dedicated fund to help cancer patients cover transport, accommodation, and food costs. People with albinism, who face elevated skin cancer risk, stand to benefit.
Africa FocusAllAfrica — AlbinismAfrica's disease burden remains largely uncounted, WHO warns
Non-communicable diseases affect millions across Africa, yet reliable data remains scarce. A WHO official says the continent sees only a partial picture of its true NCD burden.
Health & Sun ProtectionJournal of Investigative DermatologyClustered moles may signal elevated melanoma risk
A Journal of Investigative Dermatology study finds that how moles are distributed across the skin — not just how many there are — may matter for melanoma risk.
Health & Sun ProtectionJournal of Investigative DermatologyCSB mutations and mild UV sensitivity: what researchers found
A study in the Journal of Investigative Dermatology links residual CSB protein activity to a milder form of UV-sensitive syndrome, distinct from Cockayne syndrome.
Health & Sun ProtectionAmerican Journal of Human GeneticsWhen genetic scores miss the individual behind the data
A study in the American Journal of Human Genetics finds that people whose traits diverge from polygenic predictions carry a higher burden of rare, damaging gene variants. The finding reshapes how researchers think about inherited disease risk.
Health & Sun ProtectionAmerican Journal of Human GeneticsSocial factors sharpen genetic disease risk predictions
A new study finds that adding social determinants of health to genetic models improves disease risk prediction across six common conditions. The findings draw on data from over 200,000 participants.
Africa FocusGoogle News — AlbinismMalawi adopts a national action plan on albinism
Human Rights Watch reports that Malawi has introduced a formal national action plan addressing the rights and protection of people with albinism.
Health & Sun ProtectionPubMed — Albinism ResearchScientists map the genes behind white tea leaves
A new study published in Nature identifies the genetic pathways that cause a rare tea plant to grow without pigment, offering clues relevant to albinism research.
Health & Sun ProtectionJournal of Investigative DermatologyA lipid molecule may explain how keloid radiotherapy works
Researchers have identified two molecular signals that drive the benefits of keloid radiotherapy, pointing toward treatments that do not require radiation access.
Africa FocusReuters Health (Albinism via Google News)Tanzania criticises film on witchcraft attacks
A Reuters report details Tanzania's official response to a documentary recording attacks on people with albinism linked to witchcraft beliefs.
Human RightsReuters Health (Albinism via Google News)UN albinism expert draws on her own past
Ikponwosa Ero, the UN's first Independent Expert on albinism, grew up facing abuse in Nigeria. Now she leads global efforts to end ritual killings of people with albinism.
Africa FocusOHCHR — Independent Expert on AlbinismMalawi's women with albinism face layered discrimination
A UN expert report documents how women and girls with albinism in Malawi face compounding threats — from ritual violence to exclusion in healthcare and education.
Health & Sun ProtectionJournal of Investigative DermatologyImmune escape mechanism found in rare skin lymphoma
A Journal of Investigative Dermatology study identifies IL4I1-producing macrophages in advanced cutaneous T-cell lymphoma, pointing to a possible pathway tumours use to evade immune detection.
Health & Sun ProtectionJournal of Investigative DermatologyWhat UV light does to moles, cell by cell
A new study mapped the effects of solar radiation on human skin tissue using single-nucleus RNA sequencing. Its findings add precision to what scientists know about UV and melanoma risk.
Health & Sun ProtectionJournal of Investigative DermatologyMouse study probes Merkel cells and skin inflammation
A Journal of Investigative Dermatology study found that Merkel cells help regulate immune-driven skin inflammation in mice, with possible implications for photosensitive skin conditions.