Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Education & InclusionAllAfrica — AlbinismGambia's volunteers are reshaping disability inclusion
Community volunteers and schools in the Gambia are working to connect mental health with disability awareness, shifting how communities talk about difference.
Real StoriesGoogle News — AlbinismA diagnosis of one in 20,000
A family in the Australian Border region shares what it means to raise a child with albinism — from the first diagnosis to daily life.
Health & Sun ProtectionJournal of Investigative DermatologyAI tool estimates melanoma depth without skin biopsy
A deep learning model trained on reflectance confocal microscopy images can classify melanoma and estimate Breslow depth non-invasively, the Journal of Investigative Dermatology reported.
Health & Sun ProtectionAllAfrica — AlbinismKenya's SHA to cut payments to clinics that withhold medicines
Kenya's Social Health Authority will reduce reimbursements to clinics that fail to dispense prescribed medicines, aiming to close gaps in primary care access.
Human RightsOHCHR — Independent Expert on AlbinismShadow report examines disability rights in Zambia
A shadow report submitted to the UN disability rights committee raises concerns about protections for people with albinism in Zambia.
Human RightsAllAfrica — AlbinismAU chair calls for action beyond albinism commitments
African Union Commission Chairperson Mahmoud Ali Youssouf has urged member states to move from political promises to concrete implementation on health.
Africa FocusAllAfrica — AlbinismAfrica's health security gaps persist despite recent progress
A new index finds African nations have strengthened health infrastructure, but funding has not kept pace with the improvements made.
Health & Sun ProtectionAllAfrica — AlbinismCompounded medicines in South Africa raise safety questions
A court case has exposed gaps in how South Africa regulates medicines made outside standard factory conditions. Researchers argue existing oversight may not be enough.
Human RightsOHCHR — Independent Expert on AlbinismHow COVID-19 amplified ritual attacks on people with albinism
A 2020 UN report found that pandemic conditions worsened witchcraft accusations and ritual violence against people with albinism across Sub-Saharan Africa.
Human RightsOHCHR — Independent Expert on AlbinismUN appoints Dr Rebecca Kammer as albinism expert
Dr Rebecca L. Kammer has been named the UN's Independent Expert on the enjoyment of human rights by persons with albinism. She is the third person to hold the role.
Human RightsOHCHR — Independent Expert on AlbinismA new UN voice for people with albinism
Ms. Muluka Anne Miti-Drummond has delivered her first statement as UN Independent Expert on Albinism, signalling her priorities for the mandate ahead.
Human RightsOHCHR — Independent Expert on AlbinismUN expert maps rights gaps facing people with albinism
The Independent Expert on Albinism presented report A/73/181 to the UN General Assembly, documenting persistent rights violations and calling for stronger state protections.
Health & Sun ProtectionAmerican Journal of Human GeneticsGene study links CDK20 mutations to severe ciliopathy
Researchers have identified CDK20 as a cause of severe ciliopathy, a finding with potential implications for understanding rare genetic conditions that can affect people with albinism.
Human RightsReuters Health (Albinism via Google News)UN urges Fiji to stop overlooking people with albinism
A UN review found that people with albinism in Fiji face social exclusion and called on the government to address discrimination directly.
Human RightsOHCHR — Independent Expert on AlbinismThe hidden risks facing migrants with albinism
A new UN report finds that people with albinism who migrate or are displaced face compounded dangers, from targeted violence to near-total exclusion from health services.
Human RightsOHCHR — Independent Expert on AlbinismUN expert maps global threats facing people with albinism
A report to the UN General Assembly details the discrimination, violence, and exclusion that people with albinism face across multiple regions. The findings call for coordinated legal and social protections.
Human RightsGoogle News — AlbinismHuman Rights Watch documents dangers facing people with albinism
A new Human Rights Watch report details the discrimination, violence, and exclusion that people with albinism face across multiple countries.
Human RightsGoogle News — AlbinismSupport, not sympathy: investing in people with albinism
A Kenyan commentary argues that people with albinism need structural investment and equal opportunity, not charitable pity. The distinction matters.
Human RightsUN General Assembly NewsUN disability rights conference marks two decades of progress
The 19th global meeting on disability rights opened at UN Headquarters, with the Secretary-General acknowledging hard-won gains and significant gaps that remain.
Human RightsAllAfrica — AlbinismHuman Rights Watch scrutinises US-Africa health data deals
Human Rights Watch has raised concerns about the privacy, security, and sovereignty of health data collected from African populations under US partnerships.