Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionAllAfrica — AlbinismNigeria Expands Polio Eradication Committee to Include Seven High-Risk States
Nigeria's National Economic Council intensifies efforts to eliminate polio by expanding its eradication committee to include seven additional high-risk states.
Health & Sun ProtectionReuters Health (Albinism via Google News)COP30 Allocates $300M for Climate Health Research as Deadly Heat Affects Vulnerable Communities
As extreme heat impacts vulnerable populations worldwide, including those with albinism, COP30 commits significant funding to address climate health challenges.
Health & Sun ProtectionJournal of Investigative DermatologyCD68 Protein Discovered as Key Regulator in Melanocyte Development
New research reveals CD68, previously known as a macrophage marker, plays a significant role in melanocyte development and function.
Human RightsOHCHR — Independent Expert on AlbinismKenya Emerges as Regional Leader in Protecting Rights of Persons with Albinism
The UN Independent Expert on Albinism highlights Kenya's progress in protecting the rights of persons with albinism, setting a potential example for the region.
Health & Sun ProtectionJournal of Investigative DermatologyBridging the Gap: Making Dermatology Research More Inclusive for All Skin Types
New research highlights the urgent need for diversity in global dermatology studies to better serve underrepresented groups, including people with albinism.
Health & Sun ProtectionGoogle News — AlbinismWHO Adds Sunscreen for Albinism to Essential Medicines List in Landmark Decision
The World Health Organization has recognized sunscreen as an essential medicine for people with albinism, improving access to this critical skin protection.
Health & Sun ProtectionGoogle News — AlbinismResearch Reveals Mechanisms Behind Eye Movements in People with Albinism
New study explores the neurological basis for spontaneous eye movements commonly experienced by people with albinism, offering insights for better care.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert Seeks Input on Human Rights of Persons with Albinism for 2026 General Assembly Report
The UN Independent Expert on albinism has issued a call for submissions to inform an upcoming report on human rights challenges facing people with albinism.
Health & Sun ProtectionPubMed — Albinism ResearchNew Research Reveals Unexpected Impacts of Albinism in Amphibian Study
Scientists studying albinism in toads uncover important insights about the broader metabolic effects of pigmentation loss beyond skin and eye conditions.
Health & Sun ProtectionReuters Health (Albinism via Google News)Climate Crisis Impacts on People with Albinism: Rising Heat Presents New Challenges
As global temperatures rise, people with albinism face increased health risks. What the climate crisis means for our community's skin protection needs.
Health & Sun ProtectionGoogle News — AlbinismNew Study Reveals Complete Albinism in Moths Through Genetic Knockout
Researchers discover that disrupting the DOPA decarboxylase gene creates complete albinism in fall armyworms, offering insights into pigmentation processes.
Health & Sun ProtectionJournal of Investigative DermatologyNew Study Reveals Skin Bacteria Interactions That May Impact Dermatitis
Research shows how Staphylococcus aureus bacteria triggers immune responses in skin conditions like atopic dermatitis, with implications for people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Explores Advanced Skin Testing for Early-Stage Lymphoma
Scientists are developing new technologies to help differentiate between similar skin conditions, offering hope for earlier diagnosis of mycosis fungoides.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert Issues Key Statement on Human Rights of Persons with Albinism
The UN Independent Expert on Albinism has released a comprehensive statement addressing human rights challenges faced by the global albinism community.
Human RightsUN General Assembly NewsSyria Shows Progress on Justice Initiatives, UN Expert Highlights Need for Support
Syria has made notable strides in transitional justice efforts according to UN reporting, signaling potential pathways for accountability after years of conflict.
Health & Sun ProtectionGoogle News — AlbinismWHO Adds Sunscreen to Essential Medicines List, Major Win for Albinism Community
People with albinism in East Africa celebrate WHO's landmark decision to include sunscreen as an essential medicine, improving access to vital skin protection.
Health & Sun ProtectionGoogle News — AlbinismDocumentary Explores Fiji's Unusually High Prevalence of Albinism
A new film investigates why Fiji has a higher-than-average rate of albinism, bringing attention to the unique challenges and experiences of this Pacific island community.
Health & Sun ProtectionJournal of Investigative DermatologyNew Techniques for Studying Skin Cell Movement in Albinism Research
Dermatology researchers outline improved methods for analyzing keratinocyte migration, which could advance understanding of skin development in albinism.
Health & Sun ProtectionJournal of Investigative DermatologyNew Retinoid Compound Shows Promise for UV Protection with Fewer Side Effects
Research reveals Hydroxypinacolone 9-cis retinoate may help prevent UV damage with less skin irritation than traditional retinoids.
Health & Sun ProtectionGoogle News — AlbinismStudy: Children with Albinism Show Enhanced Visual Search Skills Despite Low Vision
New research reveals children with albinism demonstrate better visual search abilities compared to peers with other visual impairments.