Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert Calls for Broader Action to Support People with Albinism in the United States
After her visit to the US, the UN Independent Expert on Albinism urges more comprehensive action to address challenges faced by people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyResearch Sheds Light on Skin Health Mechanisms Relevant to Rare Disease SAVI
New study examines how a genetic mutation affects skin healing after UV damage, with potential implications for understanding skin health in various conditions.
Health & Sun ProtectionJournal of Investigative DermatologyDupilumab Shows Promise in Restoring Skin Nerve Function in Atopic Dermatitis
Recent research reveals how a treatment may help restore normal nerve patterns in the skin of adults with atopic dermatitis, potentially reducing severe itching.
Health & Sun ProtectionJournal of Investigative DermatologyNew Genetic Factors in Atopic Dermatitis Discovered Through Canine Research
Research in the Journal of Investigative Dermatology reveals new insights into atopic dermatitis genetics using canine models that may benefit human treatment.
Health & Sun ProtectionJournal of Investigative DermatologyPromising Results for New Topical Treatment in Frontal Fibrosing Alopecia Study
New research explores delgocitinib cream as potential treatment for frontal fibrosing alopecia, a condition that can affect individuals with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Reveals Role of CCL27 Protein in Skin Healing Process
Study identifies mechanisms that could lead to improved wound healing treatments, potentially benefiting people with albinism who face skin vulnerabilities.
Health & Sun ProtectionJournal of Investigative DermatologyResearch Note: Skin Microbiota Study on Atopic Dermatitis Continues After Brief Concern
A brief concern raised about a dermatology study on skin inflammation has been resolved, with research on commensal microbiota continuing.
Health & Sun ProtectionReuters Health (Albinism via Google News)The Unique Perspective: Life with Ocular Albinism
Exploring how ocular albinism affects vision and the extraordinary adaptations people make to navigate daily life despite visual differences.
Health & Sun ProtectionAllAfrica — AlbinismMalaria's Hidden Impact on People with Albinism in Nigeria
As Nigeria marks World Malaria Day, we examine why malaria prevention and treatment deserve special attention for people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyAI-Enhanced Skin Cancer Detection Shows Promise for People with Albinism
New research shows AI-assisted dermoscopy could help detect skin cancers earlier, potentially benefiting those with albinism who face higher skin cancer risks.
Human RightsOHCHR — Independent Expert on AlbinismUganda's New Action Plan Brings Hope for People with Albinism
Uganda has launched a national action plan to protect and empower people with albinism, addressing discrimination and human rights violations.
Health & Sun ProtectionPubMed — Albinism ResearchResearchers Identify Novel Genetic Variant in Oculocutaneous Albinism Type 1A
A new study reveals a previously unknown TYR gene variant responsible for OCA1A, expanding our understanding of albinism's genetic foundations.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Explores Skin Cell Patterns in Folliculotropic Mycosis Fungoides
A study in the Journal of Investigative Dermatology examines the cellular characteristics of a rare skin lymphoma that affects people with albinism.
Real StoriesGoogle News — AlbinismThe Guna People of Panama: Indigenous Community Embraces Albinism as Part of Their Identity
How the indigenous Guna people of Panama have integrated albinism into their cultural identity, offering a unique perspective on living with the condition.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Reveals Immune Cell Activity Patterns in Skin Disease Affecting Albinism
Recent study maps how immune cells activate in hidradenitis suppurativa, a skin condition that can impact people with albinism differently due to their unique skin biology.
Human RightsOHCHR — Independent Expert on AlbinismUN Consultation Addresses Witchcraft Accusations and Their Impact on People with Albinism
The UN Independent Expert on Albinism is leading a consultation on human rights violations related to witchcraft accusations affecting vulnerable groups.
Health & Sun ProtectionGoogle News — AlbinismUnderstanding Albinism: Causes and Effects on Skin Pigmentation
Exploring the genetic factors behind albinism, how it affects melanin production, and its impact on skin pigmentation.
Health & Sun ProtectionJournal of Investigative DermatologyPromising New Treatment: TYK2 Inhibitor Shows Potential for Psoriasis Patients
New research reveals how selective TYK2 inhibition with zasocitinib may offer hope for those with moderate-to-severe plaque psoriasis.
Health & Sun ProtectionPubMed — Albinism ResearchGene-Edited Cane Toads Illuminate the Challenges of Albinism in Wildlife
New research on albinism in cane toads provides insight into how this genetic condition affects survival in wild populations.
Health & Sun ProtectionJournal of Investigative DermatologyAdding Radiation May Help When Immunotherapy Fails in Merkel Cell Carcinoma
New research suggests radiation therapy might benefit patients with Merkel cell carcinoma when immune checkpoint inhibitors alone don't work.