Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
- Health & Sun ProtectionStanding Voice
Cape Town project secures free high-SPF sunscreen for 1,200 children with albinism
A partnership between a Cape Town NGO and the Western Cape Department of Health has delivered free high-SPF sunscreen to over 1,200 children with albinism in public schools.
- Real StoriesNOAH — National Organization for Albinism and Hypopigmentation
NOAH 2026 conference brings together 900 people with albinism from 38 countries
The NOAH 2026 conference in Atlanta drew nearly 900 attendees from 38 countries, marking the largest gathering in the organisation's history, with sessions on health, rights, and international advocacy.
- Health & Sun ProtectionReuters Health
Study maps critical gap in dermatology access for persons with albinism across East Africa
A new study finds fewer than 15% of persons with albinism across six East African countries have ever seen a dermatologist, mapping a critical gap in preventable skin cancer care.
- Human RightsStanding Voice
Ghana Journalists Association adopts reporting framework for albinism coverage
The Ghana Journalists Association has adopted a voluntary code of practice asking journalists to avoid stigmatising language and centre the voices of persons with albinism in their coverage.
- Health & Sun ProtectionAssociação Brasil Albinismo
New Brazilian survey maps the everyday needs of people with albinism
A nationwide survey by Associação Brasil Albinismo finds that access to sunscreen, low-vision services, and school accommodations remains deeply uneven across regions.
- Education & InclusionUnder The Same Sun
A mentorship network in Uganda connects young people with albinism to careers
A community-founded mentorship programme matches secondary school students with albinism to working adults across teaching, law, medicine, advocacy, and the arts.
- Human RightsAlbinism Fellowship UK
Albinism Fellowship UK report finds widespread workplace barriers despite equality law
A new Albinism Fellowship UK report finds the majority of working-age respondents have experienced significant workplace barriers, despite strong legal protections under the Equality Act.
- Education & InclusionUnder The Same Sun
Under The Same Sun launches school awareness kit for Canadian classrooms
Under The Same Sun has launched a classroom awareness kit for Canadian schools, developed with persons with albinism and educators to reduce stigma and improve inclusion.
