Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Human RightsOHCHR — Independent Expert on AlbinismUN Experts Question Zambia on Albinism Protections During Disability Rights Review
The UN Committee on Rights of Persons with Disabilities has raised specific questions about protections for people with albinism during Zambia's review.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Sheds Light on Skin Inflammation Mechanisms Relevant to Albinism
Study reveals how a specific inflammatory protein can be activated in human skin cells, offering insights for albinism-related skin care research.
Health & Sun ProtectionJournal of Investigative DermatologyResearch Reveals How Dual Genetic Mutations Affect Pigmentation in Albinism
New study identifies how mutations in two different channel genes interact to affect melanosomal pH and pigmentation in a person with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Explores Brain's Role in Itching Sensation and Emotional Responses
Study reveals how the hippocampus may regulate itch sensations and associated negative emotions, potentially opening pathways for better treatment approaches.
Health & Sun ProtectionGoogle News — AlbinismAlbinism: Separating Myths from Reality
A new Lancet review examines common misconceptions about albinism and provides evidence-based insights to promote understanding and inclusion.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Reveals Key Protein Interaction in the Development of Vitiligo
Scientists identify how specific proteins may trigger melanocyte cell death in vitiligo, offering potential insight for skin conditions affecting people with albinism.
Health & Sun ProtectionGoogle News — AlbinismNIH Breakthrough: First Stem Cell Model of Albinism Opens New Research Pathways
National Institutes of Health researchers have developed the first stem cell model to study eye conditions related to albinism, marking a significant advancement.
Health & Sun ProtectionJournal of Investigative DermatologyAdvances in UV Protection: New Hope for Preventing Skin Cancer
Recent dermatology research explores innovative approaches to UVB protection, offering promise for those with albinism and others at high risk of skin cancer.
Health & Sun ProtectionJournal of Investigative DermatologyFatty Acid Receptor CD36 May Play Key Role in Psoriasis Skin Inflammation
New research reveals how a specific protein involved in fat transport might contribute to psoriasis development, suggesting potential treatment targets.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Shows How UV Damage Affects Skin Cells in People with Albinism
Recent study reveals important insights into how UV radiation damages skin cells, with particular relevance for the albinism community's sun protection needs.
Health & Sun ProtectionOrphanet Journal of Rare DiseasesRaDiCo: Advancing Research on Rare Diseases Including Albinism in France
France's national research program RaDiCo creates cohorts to study rare diseases, providing hope for conditions like albinism through improved research infrastructure.
Health & Sun ProtectionJournal of Investigative DermatologyMITF: The Transcription Factor Advancing Understanding of Skin Cell Relationships in Albinism
New research reveals how a key transcription factor involved in albinism may influence cell adhesion and melanoma behavior.
Health & Sun ProtectionJournal of Investigative DermatologyStudy Finds Promising Alternative Treatments for Severe Acne Using Isotretinoin's Signature
Research reveals new potential therapies for severe acne that may provide safer alternatives to isotretinoin, benefiting those with albinism and skin concerns.
Health & Sun ProtectionGoogle News — AlbinismHats Serve as Essential Protection for Namibians with Albinism
In Namibia, sun-protective hats are considered vital 'medication' for people with albinism, highlighting the critical need for accessible sun protection.
Health & Sun ProtectionJournal of Investigative DermatologyStudy Reveals Link Between Neurofibromatosis and Allergic Conditions
New research suggests people with NF1 may experience increased rates of allergic conditions, potentially offering insights for those with albinism.
Human RightsAllAfrica — AlbinismGhana: Mental Health Advocate Calls for Greater Awareness in May
Stigma surrounding mental health in Ghana persists. Advocate Betty Elikem Azornu urges open conversations to support people with albinism and others facing mental health challenges.
Human RightsAllAfrica — AlbinismHealthcare Reforms in Zimbabwe: Potential Impact on People with Albinism
Proposed changes to Zimbabwe's medical aid regulations could impact healthcare access for vulnerable populations, including people with albinism.
- Human RightsUN OHCHR — Independent Expert on Albinism
UN independent expert calls for a global albinism rights agenda at the Human Rights Council
The UN Independent Expert presented a landmark report calling for a dedicated global agenda to protect the human rights of persons with albinism.
- Health & Sun ProtectionStanding Voice
New Standing Voice survey finds 80 % of Tanzanians with albinism have significant uncorrected sight loss
A new community survey finds that more than 80% of Tanzanians with albinism have significant uncorrected vision impairment, calling for urgent integration of low-vision support into national eye health strategy.
- Africa FocusUN OHCHR — Independent Expert on Albinism
Malawi parliament passes landmark Persons with Albinism Protection Bill
Malawi has passed a landmark protection bill, making it one of the first countries in sub-Saharan Africa to enact dedicated legislation criminalising attacks on persons with albinism.
