Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Human RightsReuters Health (Albinism via Google News)The Urgent Human Rights Crisis Facing Tanzanians with Albinism
People with albinism in Tanzania face deadly superstitions as they're targeted based on dangerous myths about HIV/AIDS cures, reports Reuters.
Human RightsUN General Assembly NewsUN Rights Experts Call for Justice in Human Trafficking Case
UN human rights experts demand accountability for young women and girls who were victims of systematic trafficking, highlighting the ongoing fight against human trafficking.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert Highlights Ongoing Challenges for Persons with Albinism in 2021 Report
The UN Independent Expert on Albinism's 2021 report emphasizes continued human rights issues and calls for stronger protections for people with albinism globally.
Human RightsGoogle News — AlbinismWHO's New Essential Medicines List Includes Crucial Treatments for People with Albinism
The World Health Organization has updated its Essential Medicines List to include sunscreen for albinism and diabetes treatments, marking a significant advocacy win.
Human RightsReuters Health (Albinism via Google News)Tanzanian Children with Albinism Receive Prosthetic Limbs and New Hope
Children with albinism who survived attacks rooted in harmful superstitions in Tanzania are receiving prosthetic limbs and rehabilitation support.
Human RightsUN General Assembly NewsUN High Commissioner: Lebanon Now Most Dangerous Country for Journalists
UN High Commissioner for Human Rights reports Lebanon has become the deadliest country for media workers in 2024, amid broader concerns about journalist safety worldwide.
Human RightsReuters Health (Albinism via Google News)Tanzanian Families Seek Protection for Children with Albinism Amid Safety Concerns
Families in Tanzania are searching for secure environments for their children with albinism as fears of attacks persist despite government efforts.
Human RightsUN General Assembly NewsUN Security Council Addresses West Bank Violence as Regional Tensions Rise
The UN Security Council meets to discuss escalating settler attacks against Palestinians in the West Bank amid broader regional instability.
Human RightsAllAfrica — AlbinismGhana: Mental Health Advocate Calls for Greater Awareness in May
Stigma surrounding mental health in Ghana persists. Advocate Betty Elikem Azornu urges open conversations to support people with albinism and others facing mental health challenges.
Human RightsAllAfrica — AlbinismHealthcare Reforms in Zimbabwe: Potential Impact on People with Albinism
Proposed changes to Zimbabwe's medical aid regulations could impact healthcare access for vulnerable populations, including people with albinism.
- Human RightsUN OHCHR — Independent Expert on Albinism
UN independent expert calls for a global albinism rights agenda at the Human Rights Council
The UN Independent Expert presented a landmark report calling for a dedicated global agenda to protect the human rights of persons with albinism.
- Health & Sun ProtectionStanding Voice
New Standing Voice survey finds 80 % of Tanzanians with albinism have significant uncorrected sight loss
A new community survey finds that more than 80% of Tanzanians with albinism have significant uncorrected vision impairment, calling for urgent integration of low-vision support into national eye health strategy.
- Africa FocusUN OHCHR — Independent Expert on Albinism
Malawi parliament passes landmark Persons with Albinism Protection Bill
Malawi has passed a landmark protection bill, making it one of the first countries in sub-Saharan Africa to enact dedicated legislation criminalising attacks on persons with albinism.
- Health & Sun ProtectionStanding Voice
Cape Town project secures free high-SPF sunscreen for 1,200 children with albinism
A partnership between a Cape Town NGO and the Western Cape Department of Health has delivered free high-SPF sunscreen to over 1,200 children with albinism in public schools.
- Real StoriesNOAH — National Organization for Albinism and Hypopigmentation
NOAH 2026 conference brings together 900 people with albinism from 38 countries
The NOAH 2026 conference in Atlanta drew nearly 900 attendees from 38 countries, marking the largest gathering in the organisation's history, with sessions on health, rights, and international advocacy.
- Health & Sun ProtectionReuters Health
Study maps critical gap in dermatology access for persons with albinism across East Africa
A new study finds fewer than 15% of persons with albinism across six East African countries have ever seen a dermatologist, mapping a critical gap in preventable skin cancer care.
- Human RightsStanding Voice
Ghana Journalists Association adopts reporting framework for albinism coverage
The Ghana Journalists Association has adopted a voluntary code of practice asking journalists to avoid stigmatising language and centre the voices of persons with albinism in their coverage.
- Health & Sun ProtectionAssociação Brasil Albinismo
New Brazilian survey maps the everyday needs of people with albinism
A nationwide survey by Associação Brasil Albinismo finds that access to sunscreen, low-vision services, and school accommodations remains deeply uneven across regions.
- Education & InclusionUnder The Same Sun
A mentorship network in Uganda connects young people with albinism to careers
A community-founded mentorship programme matches secondary school students with albinism to working adults across teaching, law, medicine, advocacy, and the arts.
- Human RightsAlbinism Fellowship UK
Albinism Fellowship UK report finds widespread workplace barriers despite equality law
A new Albinism Fellowship UK report finds the majority of working-age respondents have experienced significant workplace barriers, despite strong legal protections under the Equality Act.
