Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionAllAfrica — AlbinismSudan Health Crisis: Dengue and Malaria Cases Affecting Vulnerable Communities
Sudan's Ministry of Health reports varying rates of infectious diseases across the country, with malaria and dengue fever posing significant health challenges.
Health & Sun ProtectionAllAfrica — AlbinismAfrica's Pathway to Malaria Elimination: New Control Methods on the Horizon
Tanzania's battle against malaria highlights the challenge of evolving mosquito resistance, with promising genetic control methods potentially benefiting communities including people with albinism.
Real StoriesReuters Health (Albinism via Google News)From Refugee to Champion: Paralympic Sprinter with Albinism Chases Gold Dreams
How a remarkable athlete with albinism found safety in Spain after fleeing Mali, and is now representing his new country at the highest level of Paralympic sport.
Human RightsOHCHR — Independent Expert on AlbinismUN Experts Question Zambia on Albinism Protections During Disability Rights Review
The UN Committee on Rights of Persons with Disabilities has raised specific questions about protections for people with albinism during Zambia's review.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Sheds Light on Skin Inflammation Mechanisms Relevant to Albinism
Study reveals how a specific inflammatory protein can be activated in human skin cells, offering insights for albinism-related skin care research.
Health & Sun ProtectionJournal of Investigative DermatologyResearch Reveals How Dual Genetic Mutations Affect Pigmentation in Albinism
New study identifies how mutations in two different channel genes interact to affect melanosomal pH and pigmentation in a person with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Explores Brain's Role in Itching Sensation and Emotional Responses
Study reveals how the hippocampus may regulate itch sensations and associated negative emotions, potentially opening pathways for better treatment approaches.
Health & Sun ProtectionGoogle News — AlbinismAlbinism: Separating Myths from Reality
A new Lancet review examines common misconceptions about albinism and provides evidence-based insights to promote understanding and inclusion.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Reveals Key Protein Interaction in the Development of Vitiligo
Scientists identify how specific proteins may trigger melanocyte cell death in vitiligo, offering potential insight for skin conditions affecting people with albinism.
Health & Sun ProtectionGoogle News — AlbinismNIH Breakthrough: First Stem Cell Model of Albinism Opens New Research Pathways
National Institutes of Health researchers have developed the first stem cell model to study eye conditions related to albinism, marking a significant advancement.
Health & Sun ProtectionJournal of Investigative DermatologyAdvances in UV Protection: New Hope for Preventing Skin Cancer
Recent dermatology research explores innovative approaches to UVB protection, offering promise for those with albinism and others at high risk of skin cancer.
Health & Sun ProtectionJournal of Investigative DermatologyFatty Acid Receptor CD36 May Play Key Role in Psoriasis Skin Inflammation
New research reveals how a specific protein involved in fat transport might contribute to psoriasis development, suggesting potential treatment targets.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Shows How UV Damage Affects Skin Cells in People with Albinism
Recent study reveals important insights into how UV radiation damages skin cells, with particular relevance for the albinism community's sun protection needs.
Health & Sun ProtectionOrphanet Journal of Rare DiseasesRaDiCo: Advancing Research on Rare Diseases Including Albinism in France
France's national research program RaDiCo creates cohorts to study rare diseases, providing hope for conditions like albinism through improved research infrastructure.
Health & Sun ProtectionJournal of Investigative DermatologyMITF: The Transcription Factor Advancing Understanding of Skin Cell Relationships in Albinism
New research reveals how a key transcription factor involved in albinism may influence cell adhesion and melanoma behavior.
Health & Sun ProtectionJournal of Investigative DermatologyStudy Finds Promising Alternative Treatments for Severe Acne Using Isotretinoin's Signature
Research reveals new potential therapies for severe acne that may provide safer alternatives to isotretinoin, benefiting those with albinism and skin concerns.
Health & Sun ProtectionGoogle News — AlbinismHats Serve as Essential Protection for Namibians with Albinism
In Namibia, sun-protective hats are considered vital 'medication' for people with albinism, highlighting the critical need for accessible sun protection.
Health & Sun ProtectionJournal of Investigative DermatologyStudy Reveals Link Between Neurofibromatosis and Allergic Conditions
New research suggests people with NF1 may experience increased rates of allergic conditions, potentially offering insights for those with albinism.
Health & Sun ProtectionGoogle News — AlbinismNew Research Reveals Diverse Patterns in Children with Partial Albinism
A recent Nature study explores the clinical and genetic variations in children with partial albinism, offering insights for improved diagnosis and care.
Human RightsOHCHR — Independent Expert on AlbinismUN Experts Call for Stronger Anti-Discrimination Laws to Protect People with Albinism
UN Independent Expert on Albinism joins global call for comprehensive anti-discrimination legislation ahead of Universal Declaration of Human Rights anniversary.