Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionAllAfrica — AlbinismNigeria Among Top 10 Countries with Highest Hepatitis B Mortality Rates
A new WHO report identifies Nigeria as one of ten countries accounting for nearly 70% of global Hepatitis B deaths, highlighting health challenges affecting all communities.
Health & Sun ProtectionAllAfrica — AlbinismUganda's Ntungamo District Faces Rising HIV and TB Rates Above National Average
Ntungamo District in Uganda is experiencing concerning health trends with HIV prevalence reaching 6%, surpassing the national average of 5.1%.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research: Skin Cancer Prevention Breakthrough for Individuals with Albinism
A VA study shows 5-fluorouracil cream reduces skin cancer risk by 75% in high-risk individuals, offering promising options for people with albinism.
Health & Sun ProtectionGoogle News — AlbinismClimate Change Amplifies Health Challenges for People with Albinism
A new report highlights how climate change creates additional health risks for people with albinism, compounding existing discrimination and access barriers.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Shows Promise for Treating Diabetic Wounds with Inflammation Boosters
Researchers discover a potential therapy that could improve healing in diabetic wounds by addressing early inflammation deficiencies.
Health & Sun ProtectionGoogle News — AlbinismScientists Uncover Molecular Mechanism Behind Rare Form of Albinism
New research published in Nature reveals the underlying mechanism of oculocutaneous albinism type 7, offering potential pathways for future treatments.
Health & Sun ProtectionJournal of Investigative DermatologyResearch Suggests Female Pattern Hair Loss May Have Inflammatory Component
New study indicates female pattern hair loss might involve immune mechanisms, potentially offering insights for people with albinism experiencing hair thinning.
Health & Sun ProtectionAllAfrica — AlbinismGambia Highlights HPV Vaccination During Africa Vaccination Week
The Gambia joins continental efforts to strengthen immunization awareness, with special focus on HPV vaccination to protect girls from cervical cancer.
Health & Sun ProtectionJournal of Investigative DermatologyNew Study Identifies Genetic Links for a Skin Condition Affecting People with Albinism
Researchers discover new genetic factors in hidradenitis suppurativa, a skin condition that can affect people with albinism, offering hope for better treatments.
Health & Sun ProtectionJournal of Investigative DermatologyUnderstanding Segmental Vitiligo: The Distinct Form of Depigmentation
New research clarifies how segmental vitiligo differs from more common vitiligo forms, offering insights that may benefit people with albinism and similar conditions.
Health & Sun ProtectionJournal of Investigative DermatologyResearchers Uncover Immune-Epithelial Connection in Aging Sweat Glands
New study reveals how age-related changes in skin immune cells may contribute to reduced sweating in older adults, with potential implications for albinism care.
Health & Sun ProtectionGoogle News — AlbinismResearchers Identify Novel Gene Variant in Oculocutaneous Albinism Type 1A
A newly discovered TYR gene variant adds to our understanding of oculocutaneous albinism type 1A, potentially improving genetic diagnosis for families.
Human RightsUNHCR AfricaUN Human Rights Chief Alerts to Rising Violence Against Children with Albinism in East Africa
The UN High Commissioner for Human Rights has raised alarm about increasing violent attacks targeting children with albinism in East African countries.
Health & Sun ProtectionGoogle News — AlbinismNew Research Uncovers Common European Genetic Pattern Linked to OCA1 Albinism
Breakthrough study reveals a previously unrecognized genetic haplotype common in Europeans that contributes to OCA1, potentially explaining 'missing heritability' cases.
Health & Sun ProtectionJournal of Investigative DermatologyNew 3D Imaging Tool Shows Promise for Monitoring Facial Vitiligo Treatment
Researchers evaluate cutting-edge 3D imaging technology to measure facial repigmentation in patients taking upadacitinib, offering new hope for objective vitiligo assessment.
Health & Sun ProtectionAllAfrica — AlbinismNiger State's Jikuci Primary Health Center: Newly Renovated But Lacking Essential Services
A renovated health facility in Niger State stands beautifully updated on the outside, but lacks the equipment and staff needed to serve patients with albinism and other community members.
Health & Sun ProtectionJournal of Investigative DermatologyBreakthrough Study Identifies ADGRE2 as Key Biomarker in Prurigo Nodularis Skin Disease
New research reveals important insights into prurigo nodularis, a skin condition affecting some people with albinism, identifying ADGRE2 as a potential biomarker.
Health & Sun ProtectionPubMed — Albinism ResearchNew Study Reveals How Gene Combinations Influence Albinism Susceptibility
Research published in Nature identifies how specific variants in the TYR and OCA2 genes work together to influence albinism development.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Helps Understand Melanoma Recurrence — Key Insight for Skin Health
A study in the Journal of Investigative Dermatology examines lentigo maligna recurrence patterns, offering important insights for people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyInside China's Pioneering Dermatological Intensive Care Unit: What It Means for Rare Skin Conditions
A groundbreaking study reveals insights from China's only dermatology ICU, highlighting implications for patients with severe skin conditions including albinism.