Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Health & Sun ProtectionJournal of Investigative DermatologyLipidomics-Based Skin Analysis Shows Promise for Melanoma Diagnostics
New research from the Journal of Investigative Dermatology explores how lipid profiling and machine learning may improve melanoma diagnosis.
Health & Sun ProtectionJournal of Investigative DermatologyUnderstanding Skin Reactions to Cancer Treatments: New Insights for People with Albinism
Research reveals how cancer immunotherapies can trigger skin reactions - important information for people with albinism who may need these treatments.
Health & Sun ProtectionJournal of Investigative DermatologyNew Treatment Hope for Aggressive Skin Cancer in Rare Skin Condition
Researchers identify promising drug candidate for treatment of aggressive skin cancers associated with recessive dystrophic epidermolysis bullosa.
Health & Sun ProtectionReuters Health (Albinism via Google News)WHO Essential Medicines List Update: What It Means for People with Albinism
The WHO has updated its Essential Medicines List, which includes important medications for conditions related to albinism care. Here's what you need to know.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Illuminates Hair Follicle Stem Cell Communication in Skin
Study reveals deeper understanding of cell communication in hair follicles, with potential implications for albinism-related skin and hair development.
Health & Sun ProtectionJournal of Investigative DermatologyStudy Explores Connection Between Itch Scales and Immune Markers in Atopic Dermatitis
New research examines how different itch measurement tools correlate with immune markers in people with atopic dermatitis, with potential insights for albinism-related skin conditions.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert on Albinism Announces Historic First Visit to the United States
The UN Independent Expert on Albinism, Ms. Muluka-Anne Miti-Drummond, will conduct her first official visit to the United States this September.
Health & Sun ProtectionAmerican Journal of Human GeneticsNew Analysis Tool Identifies Cellular Patterns in Genetic Conditions Including Albinism
Researchers have developed PACells, a promising framework that could improve understanding of cellular mechanisms in conditions like albinism.
Health & Sun ProtectionJournal of Investigative DermatologyHow UVB Light Affects Skin Barrier Function in People with Albinism
New research explores the complex relationship between UVB exposure and skin barrier health, with significant implications for people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyUnderstanding Remission in Psoriasis Treatments: New Review Highlights Research Gaps
A new study reviews how systemic therapies for moderate-to-severe psoriasis perform after treatment stops, with implications for skin health in albinism.
Health & Sun ProtectionJournal of Investigative DermatologyNew Discovery: MRGPRX1 Protein Impacts Melanin Production in Human Skin Cells
Researchers identify a protein that may influence melanin production, with potential implications for people with albinism and other pigmentation conditions.
Health & Sun ProtectionJournal of Investigative DermatologyJournal of Investigative Dermatology Subscription Information
Information regarding subscription access to the Journal of Investigative Dermatology, a publication that occasionally features research on albinism.
Health & Sun ProtectionJournal of Investigative DermatologyATR Inhibition Shows Promise for Sézary Syndrome Treatment
Recent research indicates that inhibiting the ATR protein may offer a new therapeutic approach for Sézary Syndrome, a rare form of cutaneous T-cell lymphoma.
Health & Sun ProtectionPubMed — Albinism ResearchBreakthrough: First Gene-Edited Reptiles with Albinism Created in Laboratory Study
Scientists have successfully created the first gene-edited reptiles with albinism, marking a significant advancement in genetic research technology.
Human RightsOHCHR — Independent Expert on AlbinismNew Pan African Parliament Guidelines Target Ritual Attacks Against People with Albinism
The Pan African Parliament has issued groundbreaking guidelines to combat harmful practices, including ritual attacks against persons with albinism across Africa.
Health & Sun ProtectionAmerican Journal of Human GeneticsNew Genetic Discovery Reveals Link Between Mitochondrial Complex I and Albinism
Researchers identify genetic variants connected to mitochondrial function that may provide insight into certain forms of albinism with multisystem effects.
Health & Sun ProtectionJournal of Investigative DermatologyHow Biosimilar Drugs Could Expand Treatment Access for People with Albinism and Psoriasis
Research suggests biosimilar medications may offer comparable treatment at lower costs, potentially improving access for people with albinism who develop psoriasis.
Health & Sun ProtectionAmerican Journal of Human GeneticsUnderstanding Cis-Mendelian Randomization: New Research Approach with Potential for Albinism Studies
Researchers outline a promising genetic research method that could advance our understanding of albinism's biological mechanisms and potential treatments.
Health & Sun ProtectionJournal of Investigative DermatologyNew Study Reveals Vitiligo's Complex Impact on Over 5,000 Chinese Patients
Research in the Journal of Investigative Dermatology provides fresh insights into vitiligo's physical and psychological effects beyond skin depigmentation.
Health & Sun ProtectionJournal of Investigative DermatologyNew Treatment Brings Hope for Odor Associated with Nagashima-type Palmoplantar Keratosis
Researchers discover microbial imbalances may cause distinctive foot odor in this genetic condition common in East Asia, with topical treatment showing promise.