Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionJournal of Investigative DermatologyStudy Illuminates Key Pathway in Rare Vascular Condition
New research identifies a metabolic pathway that may contribute to the progression of kaposiform hemangioendothelioma (KHE), offering potential for future treatments.
Real StoriesGoogle News — AlbinismKenyan Para Sprinter with Albinism Breaks Barriers on the Track
A Kenyan athlete with albinism is challenging stereotypes and inspiring others through their achievements in Paralympic sports.
Health & Sun ProtectionGoogle News — AlbinismResearchers Identify Characteristics of Oculocutaneous Albinism Type 7
Recent study in Nature reveals the clinical features and genetic mutations of oculocutaneous albinism type 7, advancing understanding of this rare type.
Health & Sun ProtectionJournal of Investigative DermatologyScalp Skin Shows Unique Response to UV Radiation Compared to Forearms, Study Finds
Research explores why scalps are vulnerable to skin cancer despite fewer years of sun exposure than other body areas, with implications for people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyStudy Reveals How UV Light Affects Skin at Cellular Level — Critical for Albinism Sun Protection
New research maps how UV exposure impacts different skin layers, with implications for better protection strategies for people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research: Ruxolitinib Cream Combined with UVB Therapy Shows Promise for Vitiligo Treatment
A study in the Journal of Investigative Dermatology examines a combined therapy approach for treating vitiligo, offering new hope for repigmentation.
Human RightsUN General Assembly NewsUN Rights Chief Calls for Reparatory Justice to Dismantle Systemic Racism
UN High Commissioner for Human Rights Volker Türk emphasizes that reparatory justice for historical injustices is essential to addressing systemic racism globally.
Health & Sun ProtectionPubMed — Albinism ResearchNew Toad Study Reveals Why Animals with Albinism Rarely Survive in the Wild
Research from Macquarie University using genetically-altered toads provides insights into the survival challenges faced by animals with albinism in natural habitats.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Explores How Skin Bacteria May Influence Acne Development
Recent study examines how differences in bacterial 'sugar coats' between healthy skin and acne-prone skin might contribute to inflammation in acne vulgaris.
Health & Sun ProtectionGoogle News — AlbinismNew Treatment Shows Promise: Nitisinone Increases Melanin in People with Albinism
NIH researchers report that nitisinone, a drug used for a rare genetic disorder, can increase melanin production in some people with albinism.
Education & InclusionOHCHR — Independent Expert on AlbinismEnsuring Proper Care for Children with Albinism: UN Expert Insights
The UN Independent Expert on Albinism highlights essential considerations for providing appropriate care to children with albinism globally.
Health & Sun ProtectionPubMed — Albinism ResearchThe Genetic Link Between Blue Eyes and Albinism: What New Research Reveals
Recent genetic research exploring blue eye color offers insights that may help us better understand albinism and the inheritance of pigmentation traits.
Health & Sun ProtectionJournal of Investigative DermatologyImpact of Dermal Scaffold on Skin Development Models: New Research Insights
Recent findings reveal how underlying skin structures affect the development of laboratory skin models, with implications for albinism research.
Health & Sun ProtectionJournal of Investigative DermatologyPsoriasis Treatments in Older Adults: Navigating Safety Concerns
New research examines the safety profile of various systemic treatments for psoriasis and psoriatic arthritis in the older adult population.
Health & Sun ProtectionPubMed — Albinism ResearchNIH Develops First Stem Cell Model of Albinism to Study Eye Conditions
Researchers at the National Institutes of Health have created a groundbreaking stem cell model to better understand vision challenges in albinism.
Health & Sun ProtectionPubMed — Albinism ResearchBreakthrough: First Gene-Edited Reptiles Show Promise for Albinism Research
Scientists have created the world's first gene-engineered reptiles, all with albinism, opening new avenues for understanding this genetic condition.
Health & Sun ProtectionOrphanet Journal of Rare DiseasesStudy Reveals Age-Related Neutrophil Activity May Drive Pulmonary Fibrosis in HPS-1
New research indicates age-related neutrophil activation may contribute to lung fibrosis progression in people with Hermansky-Pudlak Syndrome type 1.
Health & Sun ProtectionPubMed — Albinism ResearchRare Double Genetic Variation Produces Striking Orange-Colored Shark
Researchers document an unusual orange-colored pyjama shark, revealing a rare combination of genetic variations similar to a form of albinism.
Real StoriesReuters Health (Albinism via Google News)Living with Albinism: Elena Rodriguez Shares Her Journey
Elena Rodriguez opens up about her experience living with albinism, highlighting challenges and triumphs in her personal story.
Health & Sun ProtectionOrphanet Journal of Rare DiseasesSyrian Study Shows Promise of Genetic Testing for Children with Albinism and Other Conditions
New research from Syria demonstrates how whole exome sequencing can help diagnose children with albinism and other rare genetic conditions more effectively.