Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionJournal of Investigative DermatologySkin Cell Research Routinely Overlooks Sex Differences — Why It Matters for Albinism
Medical researchers are reexamining how sex differences affect skin biology, with potential implications for albinism treatment approaches.
Health & Sun ProtectionJournal of Investigative DermatologyAdvanced Proteomics Offers New Insights into Rare Skin Disorder, May Aid Albinism Research
A breakthrough proteomics study of pachyonychia congenita reveals detailed protein changes in skin cells, potentially benefiting other genetic skin conditions.
Health & Sun ProtectionJournal of Investigative DermatologyKiwifruit Consumption Boosts Skin Vitamin C Levels, Improving Skin Health
New research shows that adding kiwifruit to your diet may naturally enhance skin vitamin C levels and improve overall skin function.
Health & Sun ProtectionAmerican Journal of Human GeneticsStudy Reveals Genetic Link Between Neurodevelopment and Health Conditions
New research shows certain genetic variants may increase risk of both mental health and heart-related conditions, with implications for comprehensive care.
Health & Sun ProtectionGoogle News — AlbinismNew Research Maps Genetic Variants in Oculocutaneous Albinism Among 28 Families
Scientists identify important genetic patterns in families with oculocutaneous albinism, including a significant deep intron variant in the TYR gene.
Health & Sun ProtectionJournal of Investigative DermatologySkin Imaging Innovations: What New Melanoma Detection Technologies Mean for Albinism Care
A review of emerging skin imaging technologies shows promise for melanoma detection, with important implications for skin health monitoring in people with albinism.
Human RightsOHCHR — Independent Expert on AlbinismUN Project Supports Human Rights Protection for People with Albinism in Mozambique
An evaluation of the OHCHR project in Mozambique reveals progress in advancing human rights protections for people with albinism amid ongoing challenges.
Human RightsOHCHR — Independent Expert on AlbinismClimate Change and Albinism: UN Experts Call for Human Rights-Centered Action at COP29
UN experts, including the Independent Expert on Albinism, urge nations at COP29 to prioritize human rights in climate policies to protect vulnerable groups.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert Completes Landmark Human Rights Assessment for People with Albinism in Panama
The UN Independent Expert on albinism conducted an official visit to Panama to evaluate human rights conditions and protections for people with albinism.
Human RightsOHCHR — Independent Expert on AlbinismUN Committee Questions Malawi on Disappearances of Persons with Albinism
The Committee on Enforced Disappearances commends Malawi for victim support services while raising concerns about missing persons with albinism.
Health & Sun ProtectionAmerican Journal of Human GeneticsNew research identifies gene linked to albinism and neurodevelopmental disorders
Scientists have discovered a gene mutation that may explain why some people with albinism also experience developmental delays and other neurological symptoms.
Health & Sun ProtectionOrphanet Journal of Rare DiseasesPhysicians' Knowledge of Albinism: Insights from Chinese Medical Study
A new study reveals important findings about physician understanding of rare conditions including albinism, highlighting both progress and areas for improvement in medical education.
Health & Sun ProtectionJournal of Investigative DermatologyNew Study Reveals Stronger Link Between Psoriatic Arthritis and Eye Inflammation
Research finds people with psoriatic arthritis may have nearly double the risk of developing uveitis, an inflammatory eye condition common in autoimmune disorders.
Human RightsOHCHR — Independent Expert on AlbinismKenya Takes Crucial Step Towards Inclusion by Counting Those Left Behind
Kenya has made significant progress by including persons with albinism in national census data, marking an important step toward greater social inclusion.
Human RightsOHCHR — Independent Expert on AlbinismUN Progress Report on SDG16: Implications for Albinism Human Rights Advocacy
The UN's second Global Progress Report on Sustainable Development Goal 16 offers important insights for albinism advocacy and human rights protection.
Health & Sun ProtectionJournal of Investigative DermatologyStudy Reveals Infection Risks in Psoriasis Treatments: Insights for Skin Care Awareness
New research examines infection rates across biologic treatments for psoriasis, offering valuable insights for individuals with albinism who often face similar skin care concerns.
Human RightsOHCHR — Independent Expert on AlbinismUN Human Rights Council Renews Mandate on Protecting Persons with Albinism
A significant advocacy win as the Human Rights Council extends global commitment to protecting the rights of persons with albinism for three more years.
Human RightsOHCHR — Independent Expert on AlbinismIndependent Expert on Albinism Presents Key Human Rights Reports to UN Council
The UN Human Rights Council received significant reports addressing human rights challenges facing persons with albinism worldwide during its 61st session.
Health & Sun ProtectionJournal of Investigative DermatologyStudy Reveals How Mast Cells May Contribute to Skin Cancer Progression in Albinism
New research explores the role of mast cells in skin cancer development, with potential implications for people with albinism who face higher skin cancer risks.
Human RightsOHCHR — Independent Expert on AlbinismClimate Change Disproportionately Affects People with Albinism, UN Expert Warns
UN Independent Expert highlights how climate change's impacts create unique health risks and displacement challenges for people with albinism worldwide.