Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionPubMed — Albinism ResearchNigerian Researchers Develop Genotype Test for Albinism Detection
Nigerian scientists have developed a test to identify carriers of albinism genes, raising important questions about genetic counseling and reproductive choices.
Human RightsOHCHR — Independent Expert on AlbinismUN Human Rights Office Reviews Impact of Advisors on Albinism Protection
The OHCHR has released an evaluation of Human Rights Advisors' programs, including efforts to protect the rights of people with albinism.
Human RightsOHCHR — Independent Expert on AlbinismUN Trust Fund Empowers Voices from Underrepresented Countries on Albinism Issues
The UN Voluntary Trust Fund ensures global participation in albinism advocacy, giving traditionally excluded nations a vital seat at the table.
Human RightsReuters Health (Albinism via Google News)The Urgent Human Rights Crisis Facing Tanzanians with Albinism
People with albinism in Tanzania face deadly superstitions as they're targeted based on dangerous myths about HIV/AIDS cures, reports Reuters.
Human RightsUN General Assembly NewsUN Rights Experts Call for Justice in Human Trafficking Case
UN human rights experts demand accountability for young women and girls who were victims of systematic trafficking, highlighting the ongoing fight against human trafficking.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert Highlights Ongoing Challenges for Persons with Albinism in 2021 Report
The UN Independent Expert on Albinism's 2021 report emphasizes continued human rights issues and calls for stronger protections for people with albinism globally.
Human RightsGoogle News — AlbinismWHO's New Essential Medicines List Includes Crucial Treatments for People with Albinism
The World Health Organization has updated its Essential Medicines List to include sunscreen for albinism and diabetes treatments, marking a significant advocacy win.
Human RightsReuters Health (Albinism via Google News)Tanzanian Children with Albinism Receive Prosthetic Limbs and New Hope
Children with albinism who survived attacks rooted in harmful superstitions in Tanzania are receiving prosthetic limbs and rehabilitation support.
Human RightsUN General Assembly NewsUN High Commissioner: Lebanon Now Most Dangerous Country for Journalists
UN High Commissioner for Human Rights reports Lebanon has become the deadliest country for media workers in 2024, amid broader concerns about journalist safety worldwide.
Human RightsReuters Health (Albinism via Google News)Tanzanian Families Seek Protection for Children with Albinism Amid Safety Concerns
Families in Tanzania are searching for secure environments for their children with albinism as fears of attacks persist despite government efforts.
Human RightsUN General Assembly NewsUN Security Council Addresses West Bank Violence as Regional Tensions Rise
The UN Security Council meets to discuss escalating settler attacks against Palestinians in the West Bank amid broader regional instability.
Human RightsReuters Health (Albinism via Google News)Four Charged in Tanzania Albino Murder Case as Activists Demand Stronger Protections
Tanzanian authorities have charged four suspects in connection with the murder of a person with albinism, highlighting ongoing human rights concerns.
Human RightsReuters Health (Albinism via Google News)Albinism in the Spotlight: The Power of Visual Storytelling
How photojournalism can raise awareness about albinism when done with respect and dignity for people living with the condition.
Human RightsGoogle News — AlbinismArt as Advocacy: How Visual Expression Challenges Albinism Stereotypes
Human Rights Watch highlights how artists with albinism are using creative expression to fight discrimination and reshape perceptions worldwide.
Human RightsGoogle News — AlbinismLiving with Albinism in Somalia: The Daily Struggle for Dignity
People with albinism in Somalia face physical harassment, social isolation, and stigma in their daily lives, highlighting urgent need for awareness and protection.
Human RightsGoogle News — AlbinismMother's Plea to End Stigma Around Daughter with Albinism
A nurse from North Midlands shares her family's journey with albinism to increase understanding and reduce stigma around the rare condition.
Human RightsReuters Health (Albinism via Google News)Finnish PM Advocates for Active Approach to Equality in Global Leadership
Finland's Prime Minister emphasizes that equality requires deliberate action, highlighting lessons that could benefit albinism advocacy worldwide.
Human RightsGoogle News — AlbinismWorld Jewish Congress Engages in UN Dialogue on Albinism
The World Jewish Congress recently participated in a UN Human Rights Council interactive dialogue with the Independent Expert on Albinism.
Human RightsGoogle News — AlbinismUN Human Rights Council Highlights Critical Need for Albinism Mandate
ISHR and Global Action on Albinism advocate for continued UN support for the human rights of people with albinism at the 61st Human Rights Council.
Health & Sun ProtectionAllAfrica — AlbinismU.S. Funding Cuts Threaten Access to Vital Medications for Vulnerable Communities
Program supporting healthcare access for marginalized groups faces challenges as U.S. funding cuts impact medication availability in Cape Town.