Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Human RightsUN General Assembly NewsAfghanistan could lose 25,000 women teachers and health workers by 2030
UNICEF warns that restrictions on women's education and employment in Afghanistan threaten essential services for vulnerable communities.
Human RightsGoogle News — AlbinismUS Supports United Nations Resolution on Persons with Albinism at UNGA 80
The United States Mission has voted in favor of a significant UN resolution supporting persons with albinism during the UNGA 80 Third Committee proceedings.
Human RightsOHCHR — Independent Expert on AlbinismUN Releases Key Guidelines on Deinstitutionalization for Persons with Disabilities
The UN Committee on the Rights of Persons with Disabilities has published comprehensive guidelines supporting community living over institutional care.
Human RightsGoogle News — AlbinismFighting for Dignity: Albinism Advocacy in Malawi Amid Continuing Challenges
Advocates for people with albinism in Malawi face significant hurdles as they work to combat deadly stigma and protect community members.
Human RightsAllAfrica — AlbinismKenya Partners With Tanzanian Firm to Build Specialized Maternal Healthcare Centers
Kenya's government has signed an agreement with Tanzania's AMSONS Group to construct 10 specialized mother-and-child hospitals across nine counties.
Human RightsGoogle News — AlbinismUN Secretary-General's Message for International Albinism Awareness Day 2023
The United Nations marks International Albinism Awareness Day with a powerful message on human rights, dignity, and inclusion for people with albinism worldwide.
Human RightsGoogle News — AlbinismRare Blue Whale with Albinism Documented in National Park
Scientists report the unprecedented sighting of a blue whale with albinism, highlighting the occurrence of this genetic condition across diverse species.
Human RightsGoogle News — AlbinismAmnesty International Urges South Africa to Protect People with Albinism from Discrimination
Amnesty International calls on South African authorities to take immediate action against discrimination faced by people with albinism in the country.
Human RightsAllAfrica — AlbinismGhana Health Ministry Warns of Fake Recruitment Scams Targeting Job Seekers
Ghana's Ministry of Health issues important alert about fraudulent recruitment websites circulating on social media that could put job applicants at risk.
Human RightsAllAfrica — AlbinismZimbabwe Faces Health Crisis: Community Health Group Calls for Urgent Investment
Health advocates warn about growing public health threats in Zimbabwe and call for improved protections for healthcare workers.
Human RightsUN General Assembly NewsUN Forms Task Force to Address Growing Humanitarian Crisis in the Middle East
The United Nations has established a new task force to respond to worsening conditions as conflict in the Middle East intensifies, causing widespread suffering.
Health & Sun ProtectionJournal of Investigative DermatologyPotential Relief for Skin Symptoms in Dermatomyositis: New Cannabinoid Treatment Study
Research suggests lenabasum, a non-psychoactive cannabinoid, may help reduce inflammation in dermatomyositis, a condition affecting people with albinism.
Human RightsGoogle News — AlbinismTanzania's Elections Raise Safety Concerns for People with Albinism
As Tanzania prepares for elections, people with albinism face heightened anxiety and security concerns due to historical violence linked to political seasons.
Human RightsGoogle News — AlbinismUN Expert Urges Portugal to Strengthen Protection for People with Albinism
A UN Independent Expert has called for Portugal to improve protective measures for persons with albinism, addressing gaps in healthcare and discrimination.
Health & Sun ProtectionOrphanet Journal of Rare DiseasesNew Information System Improves Rare Disease Research for Conditions Like Albinism
The RaDiCo platform brings new hope for rare disease communities by enhancing how researchers collect and analyze data, potentially accelerating treatments.
Human RightsGoogle News — AlbinismColorism in India: How Bias Affects People with Albinism
Despite genetic science proving otherwise, people with albinism in India still face discrimination rooted in colorism and misunderstanding about their condition.
Human RightsOHCHR — Independent Expert on AlbinismUN Experts Affirm: Social Media Freedom Doesn't Include Racial Hatred Against Persons with Albinism
UN human rights experts warn that freedom of expression has limits when it comes to spreading racial hatred against marginalized groups on social media platforms.
Human RightsGoogle News — AlbinismTanzanians with albinism receive life-changing prosthetics in New Jersey program
Survivors of violence from Tanzania find new mobility and hope through specialized prosthetics program in New Jersey, highlighting both challenges and resilience.
Human RightsGoogle News — AlbinismRenewed Attacks Against Persons with Albinism in Malawi Sound Community Alarm
Recent incidents targeting persons with albinism in Malawi have sparked renewed concerns about their safety and human rights protections in the region.
Human RightsUN General Assembly NewsSyrian Refugees Return from Lebanon Amid Middle East Conflict, UN Reports
UN agencies confirm large numbers of Syrian refugees returning from Lebanon as Middle East tensions escalate, with many arriving exhausted and with few possessions.