Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Human RightsOHCHR — Independent Expert on AlbinismUN Experts Call on New US Administration to Prioritize Human Rights for Persons with Albinism
UN Independent Expert on Albinism joins other human rights experts urging the new US administration to strengthen human rights commitments domestically and internationally.
Human RightsOHCHR — Independent Expert on AlbinismCOVID-19's Impact on Young People with Albinism: New UN Report Reveals Challenges
A UN expert report reveals how the pandemic amplified existing challenges for young people with albinism, affecting education, healthcare access, and protection services.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert Launches New Guidelines to Combat Harmful Practices Against People with Albinism
The UN Independent Expert on Albinism has released groundbreaking guidelines aimed at ending harmful practices affecting people with albinism worldwide.
Human RightsGoogle News — AlbinismThe Human Rights Crisis: Addressing Violence Against People with Albinism
People with albinism continue to face threats of violence and dismemberment in some regions, with UN human rights bodies working to protect this vulnerable population.
Human RightsOHCHR — Independent Expert on AlbinismUN Committee Questions Benin on Discrimination Against People with Albinism
Experts from the UN Committee on Racial Discrimination raise concerns about discrimination facing people with albinism in Benin during country review.
Human RightsGoogle News — AlbinismEswatini Cultural Leaders Take Stand Against Albinism Discrimination
Traditional leaders in Eswatini are confronting harmful myths about albinism, demonstrating how cultural authorities can become allies in fighting discrimination.
Real StoriesGoogle News — AlbinismComedy Series 'Pretty Blind' Brings Albinism and Partial Sight to the Screen
AMI-tv's new comedy series 'Pretty Blind' features a protagonist with albinism, bringing representation and humor to the lived experience of partial sight.
Human RightsUNHCR AfricaUN Daily Brief Highlights Issues Facing People with Albinism
The United Nations has released a daily brief focusing on albinism alongside other humanitarian concerns, including displacement in Central America.
Human RightsOHCHR — Independent Expert on AlbinismUN Committee Reviews Zambia's Disability Rights Record, Including Albinism Protections
The UN Committee on the Rights of Persons with Disabilities has published findings on seven countries, including Zambia, where albinism rights were assessed.
Human RightsGoogle News — AlbinismProtecting the Rights and Safety of People with Albinism Worldwide
Amid ongoing human rights violations, advocacy efforts intensify to ensure people with albinism can live safely and with dignity around the world.
Human RightsOHCHR — Independent Expert on AlbinismIndependent Expert on Albinism Releases New Report on Rights Protection
The UN Independent Expert on Albinism has published findings on protecting the human rights of persons with albinism globally.
Human RightsOHCHR — Independent Expert on AlbinismUN Committee Commends Burundi on Anti-Discrimination Progress, Including Protections for Albinism
The UN Committee on Elimination of Racial Discrimination has recognized Burundi's efforts to combat discrimination against people with albinism amid broader human rights discussions.
Human RightsOHCHR — Independent Expert on AlbinismUN Committee: Tanzania's Inaction on Ritual Attacks Against People with Albinism Amounts to Condoning
The UN Committee on the Rights of Persons with Disabilities criticizes Tanzania for failing to investigate and address violence against people with albinism.
Human RightsUNHCR AfricaUNHCR Resettles Refugees with Albinism from Malawi Due to Safety Concerns
The UN Refugee Agency has relocated refugees with albinism from Malawi due to persistent threats, highlighting ongoing protection challenges.
Health & Sun ProtectionJournal of Investigative DermatologyStudy on Potential Hair Loss Treatments for People with Albinism Withdrawn
A research article exploring platelet-rich plasma and microneedling as potential alopecia treatments has been withdrawn due to duplication.
Human RightsGoogle News — AlbinismUN Reports Surge in Attacks on People with Albinism During COVID-19 Pandemic
A United Nations expert has reported an alarming increase in violence against people with albinism during the global pandemic, citing harmful superstitions as a driving factor.
Human RightsUNHCR AfricaUNHCR Provides Protection for Young Congolese Refugee with Albinism Fleeing Persecution
A young person with albinism from DRC receives life-saving support from UNHCR after escaping harmful superstitious beliefs targeting their condition.
Health & Sun ProtectionGoogle News — AlbinismEnhancing Quality of Life for People with Albinism: New Approaches
Recent developments in care strategies are making significant differences in the lives of people with albinism, addressing both medical needs and quality of life.
Human RightsPubMed — Albinism ResearchRare Albino Asian Water Snake Discovered in Assam: First Documented Sighting
Wildlife researchers have documented the first-ever sighting of an albino Asian water snake in Assam, India, marking a significant discovery for biodiversity studies.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert: Eliminating Barriers for Persons with Albinism Critical in Lesotho
UN Independent Expert on Albinism urges Lesotho to address challenges faced by persons with albinism through inclusive policy reforms and awareness programs.