Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Teaching with Albinism: Deputy Head Teacher Shares His Inspiring Journey
Adam, a UK deputy head teacher and Paralympian with albinism, discusses his educational career, goalball achievements, and unique classroom insights.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Finding Self-Acceptance and Global Success: Luke's Journey with Albinism
From feeling different to designing cruise ships worldwide, Luke shares his inspiring story of self-acceptance and career success as a person with albinism.
Health & Sun ProtectionOrphanet Journal of Rare DiseasesUnderstanding Skin Health in Hermansky-Pudlak Syndrome Types 1 and 3
New research reveals important insights into the dermatologic manifestations experienced by people with Hermansky-Pudlak Syndrome types 1 and 3.
Human RightsOHCHR — Independent Expert on AlbinismUN Independent Expert on Albinism Highlights Ongoing Protection Challenges
The UN Independent Expert on the enjoyment of human rights by persons with albinism addresses critical protection gaps for vulnerable communities.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Finding Out Your Baby Has Albinism: One Family's Journey
Jon and Debbie share their emotional journey discovering their daughter Cleo has albinism and how they've empowered her to advocate for herself.
Real StoriesReuters Health (Albinism via Google News)Photographer Yara Nardi Documents Albinism Community Through Lens of Dignity
Reuters photographer Yara Nardi has created a visual documentary highlighting the lives and experiences of people with albinism with respect and authenticity.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Finding Self-Acceptance: Jenny Bovard Shares Her Journey with Albinism
The Albinism Life podcast features Jenny Bovard from Canada discussing her path to self-acceptance and experiences living with albinism.
Real StoriesGoogle News — Albinism"It Felt Like A Punishment": Living with Albinism in Tanzania
A deeply personal account of growing up with albinism in Tanzania reveals ongoing challenges despite progress in human rights protections.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert Urges Malawi to Strengthen Community Protection for People with Albinism
United Nations Independent Expert recommends community-based protection systems to prevent attacks on people with albinism in Malawi.
Human RightsOHCHR — Independent Expert on AlbinismMalawi's Progress on Disability Rights Recognized, Committee Seeks More Inclusive Policies
UN experts acknowledge Malawi's implementation of disability rights conventions while pushing for greater inclusion of persons with albinism in disaster management.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Finding Belonging: The Power of Friendship and Representation for People with Albinism
Sara discusses the importance of seeing others like herself and how meaningful friendships within the albinism community can create powerful support systems.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Artist Fin Shares How She Perceives the World Through Art Despite Visual Impairment
Talented artist Fin discusses how she navigates museums with her long cane and expresses her unique visual perspective through art.
Real StoriesGoogle News — AlbinismAfrican Models with Albinism Breaking Barriers and Inspiring Others
Models with albinism across Africa are challenging stereotypes and inspiring others in the community to pursue their dreams despite societal prejudice.
Human RightsGoogle News — AlbinismA Decade of Albinism Awareness: Celebrating Progress While Challenges Persist
On the 10th anniversary of International Albinism Awareness Day, the global community marks significant achievements while acknowledging work still needed.
Health & Sun ProtectionPubMed — Albinism ResearchWorld's First Gene-edited Reptiles: Albino Lizards Mark Scientific Milestone
Scientists have created the first gene-edited reptiles, resulting in albino lizards that could advance understanding of albinism genetics across species.
Human RightsOHCHR — Independent Expert on AlbinismUN Launches Global Survey to Document Violence Against Persons with Albinism
The United Nations is gathering critical data on disability-based violence experienced by persons with albinism through a new comprehensive global survey.
Human RightsOHCHR — Independent Expert on AlbinismUN Committee Commends Kenya's Progress, Questions Remain on Human Rights Protections
Kenya receives praise for legal aid programs while fielding questions on indigenous rights and migrant worker protections at UN racial discrimination review.
Human RightsOHCHR — Independent Expert on AlbinismUN Call for Inputs: Enhancing Political Participation of Persons with Albinism
The UN Independent Expert on Albinism seeks inputs on breaking barriers to political participation for persons with disabilities, including albinism.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert Releases Landmark Report on Rights-Based Support for Persons with Albinism
The UN Independent Expert on Albinism has published a comprehensive report addressing disability rights and support systems for persons with albinism globally.
Human RightsGoogle News — AlbinismMozambique: How People with Albinism Show Courage Against Discrimination
Human Rights Watch documents the resilience of people with albinism in Mozambique who face ongoing stigma and safety challenges despite policy progress.