Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Africa FocusGoogle News — AlbinismEswatini's cultural leaders take on albinism discrimination
Traditional leaders in Eswatini are actively challenging the beliefs that put people with albinism at risk. A new analysis examines what that leadership looks like in practice.
Human RightsGoogle News — AlbinismNigerians with albinism call for inclusion, not pity
Activists and community members in Nigeria are pushing for structural change — access, representation, and dignity — over charitable sympathy.
Health & Sun ProtectionGoogle News — AlbinismAbuja outreach brings care to people with albinism
The Albinism Association of Nigeria called for sustained support as a medical outreach in Abuja provided health services to the local albinism community.
Human RightsGoogle News — AlbinismAttacked in Africa, fitted with prosthetics in New Jersey
People with albinism who lost limbs in ritual attacks across sub-Saharan Africa have received prosthetic arms through a New Jersey-based programme.
Health & Sun ProtectionGoogle News — AlbinismA new OCA2 mutation identified in genetic case report
Researchers have documented a previously unreported genetic mutation linked to oculocutaneous albinism type 2, adding detail to how OCA2 is understood at the molecular level.
Africa FocusGoogle News — AlbinismTanzania sets aside Sh1.9bn for albinism skin oil
The Tanzanian government has allocated 1.9 billion shillings for protective skin oil for people with albinism, alongside new oversight measures.
Education & InclusionAllAfrica — AlbinismUganda health experts warn against traditional remedy delays
In Ntungamo District, health experts say families turning to traditional remedies for misdiagnosed conditions are causing avoidable child deaths.
Africa FocusAllAfrica — AlbinismMalawi's water and sanitation reforms stall under funding pressure
Senior officials warn Malawi must move faster on water and sanitation targets. People with albinism, who depend on clean water for sun protection routines, face compounded risk.
Health & Sun ProtectionGoogle News — AlbinismFiji moves to improve care for people with albinism
The Fiji Times reports on new efforts to strengthen health services for people with albinism in the Pacific island nation.
Human RightsGoogle News — AlbinismUN calls for essential healthcare for Zimbabweans with albinism
The United Nations has demanded that Zimbabwe ensure people with albinism can access basic healthcare, raising concern over persistent gaps in provision.
Human RightsGoogle News — AlbinismAfrican court holds Tanzania responsible for albinism attacks
The African Court on Human and Peoples' Rights has ruled Tanzania violated the rights of people with albinism. The decision marks a significant moment in regional human rights accountability.
Health & Sun ProtectionGoogle News — AlbinismWHO calls sunscreen life-saving for people with albinism
The World Health Organization has declared sunscreen essential, not optional, for people with albinism — and is calling for equitable global access.
Africa FocusGoogle News — AlbinismHRW report documents violence against Malawians with albinism
A new Human Rights Watch report finds that people with albinism in Malawi continue to face killings, abductions, and systematic discrimination. The findings call for urgent government action.
Health & Sun ProtectionGoogle News — AlbinismKenya agency offers free cancer screening for people with albinism
A state health agency ran free skin cancer screenings for people with albinism in Kenya, where sun exposure poses a significant and often unaddressed risk.
Africa FocusGoogle News — AlbinismA pageant in Zimbabwe reframes beauty on its own terms
An annual competition in Zimbabwe centres people with albinism as its focus, challenging long-held stigma in a country where misconceptions remain widespread.
Africa FocusGoogle News — AlbinismWho is targeting people with albinism in Uganda?
Attacks on people with albinism in Uganda are drawing renewed attention, as communities and activists call for stronger protections and accountability.
Human RightsGoogle News — AlbinismPakistan marks International Albinism Awareness Day
Radio Pakistan reported on the annual observance, held each June 13 to draw attention to the rights and lives of people with albinism worldwide.
Health & Sun ProtectionJournal of Investigative DermatologyRNA medicines and what they could mean for skin disease
A review in the Journal of Investigative Dermatology traces how RNA-based treatments are moving from COVID vaccines toward skin conditions including genetic diseases.
Health & Sun ProtectionJournal of Investigative DermatologyMouse skin study challenges a long-held lab assumption
A new atlas of hair follicle cycles across the whole mouse body finds that dorsal skin patches do not represent the whole animal. The finding has implications for pigmentation and skin research.
Health & Sun ProtectionAllAfrica — AlbinismSouth Africa's patent reform delay costs patients access
Twelve years after a lobbying scandal exposed pharmaceutical industry pressure, South Africa has still not passed the Patent Amendment Bill. Activists say the delay costs lives.