Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Human RightsReuters Health (Albinism via Google News)UN urges Fiji to stop overlooking people with albinism
A UN review found that people with albinism in Fiji face social exclusion and called on the government to address discrimination directly.
Human RightsOHCHR — Independent Expert on AlbinismThe hidden risks facing migrants with albinism
A new UN report finds that people with albinism who migrate or are displaced face compounded dangers, from targeted violence to near-total exclusion from health services.
Human RightsOHCHR — Independent Expert on AlbinismUN expert maps global threats facing people with albinism
A report to the UN General Assembly details the discrimination, violence, and exclusion that people with albinism face across multiple regions. The findings call for coordinated legal and social protections.
Human RightsGoogle News — AlbinismHuman Rights Watch documents dangers facing people with albinism
A new Human Rights Watch report details the discrimination, violence, and exclusion that people with albinism face across multiple countries.
Human RightsGoogle News — AlbinismSupport, not sympathy: investing in people with albinism
A Kenyan commentary argues that people with albinism need structural investment and equal opportunity, not charitable pity. The distinction matters.
Human RightsUN General Assembly NewsUN disability rights conference marks two decades of progress
The 19th global meeting on disability rights opened at UN Headquarters, with the Secretary-General acknowledging hard-won gains and significant gaps that remain.
Human RightsAllAfrica — AlbinismHuman Rights Watch scrutinises US-Africa health data deals
Human Rights Watch has raised concerns about the privacy, security, and sovereignty of health data collected from African populations under US partnerships.
Africa FocusGoogle News — AlbinismDiscrimination against people with albinism persists in Malawi
A new report documents continued discrimination facing people with albinism in Malawi, across education, healthcare, and daily life.
Health & Sun ProtectionGoogle News — AlbinismHuman Rights Watch calls for sunscreen access for albinism
Human Rights Watch has published a report calling for guaranteed access to sun protection for people with albinism. Lack of sunscreen raises significant skin cancer risk.
Human RightsGoogle News — AlbinismA Nigerian man with albinism deported from the US
Emeka Eze sought asylum in the United States citing targeted violence linked to his albinism. He was deported under the Trump administration's asylum restrictions.
Health & Sun ProtectionPubMed — Albinism ResearchA new OCA2 mutation identified in genetic case report
Researchers have documented a previously unreported genetic mutation linked to oculocutaneous albinism type 2, adding to the known map of OCA2 variants.
Human RightsOHCHR — Independent Expert on AlbinismUN expert urges Fiji to protect people with albinism
The UN Independent Expert on Albinism called on Fiji to take immediate action to address discrimination and social exclusion facing people with albinism in the Pacific nation.
Health & Sun ProtectionAllAfrica — AlbinismNigeria launches N50 million cancer patient support fund
The Nigerian federal government has established a dedicated fund to help cancer patients cover transport, accommodation, and food costs. People with albinism, who face elevated skin cancer risk, stand to benefit.
Africa FocusAllAfrica — AlbinismAfrica's disease burden remains largely uncounted, WHO warns
Non-communicable diseases affect millions across Africa, yet reliable data remains scarce. A WHO official says the continent sees only a partial picture of its true NCD burden.
Health & Sun ProtectionJournal of Investigative DermatologyClustered moles may signal elevated melanoma risk
A Journal of Investigative Dermatology study finds that how moles are distributed across the skin — not just how many there are — may matter for melanoma risk.
Health & Sun ProtectionJournal of Investigative DermatologyCSB mutations and mild UV sensitivity: what researchers found
A study in the Journal of Investigative Dermatology links residual CSB protein activity to a milder form of UV-sensitive syndrome, distinct from Cockayne syndrome.
Health & Sun ProtectionAmerican Journal of Human GeneticsWhen genetic scores miss the individual behind the data
A study in the American Journal of Human Genetics finds that people whose traits diverge from polygenic predictions carry a higher burden of rare, damaging gene variants. The finding reshapes how researchers think about inherited disease risk.
Health & Sun ProtectionAmerican Journal of Human GeneticsSocial factors sharpen genetic disease risk predictions
A new study finds that adding social determinants of health to genetic models improves disease risk prediction across six common conditions. The findings draw on data from over 200,000 participants.
Africa FocusGoogle News — AlbinismMalawi adopts a national action plan on albinism
Human Rights Watch reports that Malawi has introduced a formal national action plan addressing the rights and protection of people with albinism.
Health & Sun ProtectionPubMed — Albinism ResearchScientists map the genes behind white tea leaves
A new study published in Nature identifies the genetic pathways that cause a rare tea plant to grow without pigment, offering clues relevant to albinism research.