Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionJournal of Investigative DermatologyStudy Reveals Genetic Links Between Albinism and Other Conditions
New research explores possible genetic connections between albinism, acne vulgaris, and inflammatory bowel disease, suggesting shared biological pathways.
Health & Sun ProtectionJournal of Investigative DermatologyUnderstanding Melanoma Cell Changes: New Research on Phenotype Switching and MITF
Recent findings reveal how melanoma cells change behavior to evade treatment, with implications for people with albinism who face higher skin cancer risks.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert on Albinism to Make First Official Visit to Portugal in November 2025
The United Nations Independent Expert on albinism will conduct an official country visit to Portugal in November 2025 to assess human rights conditions.
Health & Sun ProtectionJournal of Investigative DermatologySleep Disruption and Genetic Factors May Influence Psoriasis Risk, Study Finds
New research reveals potential connections between sleep patterns, genetics, and psoriasis development—findings with relevance for skin health in albinism.
Health & Sun ProtectionGoogle News — AlbinismUnderstanding Pigment Loss in Birdshot Chorioretinitis: New Research Insights
Recent research explores the connection between Birdshot chorioretinitis and pigmentation changes that mimic albinism symptoms in the eye.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Explores Underlying Causes of Rare Sweat Gland Disorder
Journal study sheds light on acquired idiopathic generalized anhidrosis, a rare condition affecting sweat production that impacts some people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Shows Promising Target to Prevent UV-Related Immune Suppression in Skin
Study identifies key pathway that could help protect against skin cancer development in people with albinism and others vulnerable to UV damage.
Health & Sun ProtectionJournal of Investigative DermatologyFibroblast Cells May Hold Key to Understanding Diabetic Wound Healing Challenges
New research explores cellular differences that could explain why wounds heal differently in people with diabetes compared to those without.
Health & Sun ProtectionAmerican Journal of Human GeneticsGlobal Study Finds New Genetic Links to Health Traits by Analyzing Recessive Genes
Research across six biobanks with nearly one million people identifies 17 recessive gene associations with various health traits, demonstrating the importance of genetic phasing.
Health & Sun ProtectionJournal of Investigative DermatologyCombining Microneedle Treatment with Low-Dose Isotretinoin May Improve Acne Therapy
New research explores whether combining microneedle radiofrequency with low-dose isotretinoin offers better results for severe acne and scarring than medication alone.
Health & Sun ProtectionJournal of Investigative DermatologyNew Research Reveals How Blood Vessel Cells Help Skin Repair in People with Albinism
Recent discoveries on extracellular vesicles could advance understanding of skin healing processes, offering hope for improved wound care for people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyNewly Discovered Protein's Role in Skin Health Could Impact Albinism Research
Research reveals ZNF750 protein's crucial role in skin barrier function, with potential implications for understanding inflammatory skin conditions common in albinism.
Human RightsOHCHR — Independent Expert on AlbinismUnited Nations Expert Urges Greater Protection for People with Albinism
The Independent Expert on Albinism calls for strengthened protections for people with albinism as a minority group facing unique challenges worldwide.
Human RightsGoogle News — AlbinismZimbabwe's Albinism Community Faces Ongoing Prejudice Despite Advocacy Efforts
People with albinism in Zimbabwe continue to battle discrimination and harmful myths, though community organizations are working to change perceptions.
Human RightsOHCHR — Independent Expert on AlbinismUN Report Highlights Systemic Human Rights Challenges Facing People with Albinism
The latest UN Independent Expert report outlines persistent barriers to human rights for people with albinism worldwide and recommends concrete actions.
Health & Sun ProtectionOrphanet Journal of Rare DiseasesGenetic Testing Study Insights: What It Means for Prenatal Diagnosis of Albinism
A 14-year study from India reveals progress in prenatal genetic diagnosis of rare conditions, with important implications for families affected by albinism.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert Calls for Better Employment Protection for People with Albinism
UN Independent Expert on Albinism urges greater alignment of laws and policies to enforce employment rights for persons with albinism globally.
Health & Sun ProtectionAmerican Journal of Human GeneticsResearch links ATG12 gene variants to neurodevelopmental disorders in people with albinism
New study in the American Journal of Human Genetics identifies genetic variants that may explain certain neurodevelopmental features in some people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyHalf of Global Survey Reports Pigmentary Disorders, Including Vitiligo and Albinism
A major global study of 48,000 adults across 34 countries reveals that 50% of people report having at least one pigmentary skin condition.
Health & Sun ProtectionJournal of Investigative DermatologyNew Method May Help Predict Atopic Dermatitis Flares Before They Happen
Research in mice identifies potential early warning signals for atopic dermatitis flares, which could benefit people with albinism who experience skin conditions.