Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Human RightsOHCHR — Independent Expert on AlbinismUN Expert on Albinism Announces Historic First Visit to the United States
The UN Independent Expert on Albinism, Ms. Muluka-Anne Miti-Drummond, will conduct her first official visit to the United States this September.
Health & Sun ProtectionAmerican Journal of Human GeneticsNew Analysis Tool Identifies Cellular Patterns in Genetic Conditions Including Albinism
Researchers have developed PACells, a promising framework that could improve understanding of cellular mechanisms in conditions like albinism.
Health & Sun ProtectionJournal of Investigative DermatologyHow UVB Light Affects Skin Barrier Function in People with Albinism
New research explores the complex relationship between UVB exposure and skin barrier health, with significant implications for people with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyUnderstanding Remission in Psoriasis Treatments: New Review Highlights Research Gaps
A new study reviews how systemic therapies for moderate-to-severe psoriasis perform after treatment stops, with implications for skin health in albinism.
Health & Sun ProtectionJournal of Investigative DermatologyNew Discovery: MRGPRX1 Protein Impacts Melanin Production in Human Skin Cells
Researchers identify a protein that may influence melanin production, with potential implications for people with albinism and other pigmentation conditions.
Health & Sun ProtectionJournal of Investigative DermatologyJournal of Investigative Dermatology Subscription Information
Information regarding subscription access to the Journal of Investigative Dermatology, a publication that occasionally features research on albinism.
Health & Sun ProtectionJournal of Investigative DermatologyATR Inhibition Shows Promise for Sézary Syndrome Treatment
Recent research indicates that inhibiting the ATR protein may offer a new therapeutic approach for Sézary Syndrome, a rare form of cutaneous T-cell lymphoma.
Health & Sun ProtectionPubMed — Albinism ResearchBreakthrough: First Gene-Edited Reptiles with Albinism Created in Laboratory Study
Scientists have successfully created the first gene-edited reptiles with albinism, marking a significant advancement in genetic research technology.
Human RightsOHCHR — Independent Expert on AlbinismNew Pan African Parliament Guidelines Target Ritual Attacks Against People with Albinism
The Pan African Parliament has issued groundbreaking guidelines to combat harmful practices, including ritual attacks against persons with albinism across Africa.
Health & Sun ProtectionAmerican Journal of Human GeneticsNew Genetic Discovery Reveals Link Between Mitochondrial Complex I and Albinism
Researchers identify genetic variants connected to mitochondrial function that may provide insight into certain forms of albinism with multisystem effects.
Health & Sun ProtectionJournal of Investigative DermatologyHow Biosimilar Drugs Could Expand Treatment Access for People with Albinism and Psoriasis
Research suggests biosimilar medications may offer comparable treatment at lower costs, potentially improving access for people with albinism who develop psoriasis.
Health & Sun ProtectionAmerican Journal of Human GeneticsUnderstanding Cis-Mendelian Randomization: New Research Approach with Potential for Albinism Studies
Researchers outline a promising genetic research method that could advance our understanding of albinism's biological mechanisms and potential treatments.
Health & Sun ProtectionJournal of Investigative DermatologyNew Study Reveals Vitiligo's Complex Impact on Over 5,000 Chinese Patients
Research in the Journal of Investigative Dermatology provides fresh insights into vitiligo's physical and psychological effects beyond skin depigmentation.
Health & Sun ProtectionJournal of Investigative DermatologyNew Treatment Brings Hope for Odor Associated with Nagashima-type Palmoplantar Keratosis
Researchers discover microbial imbalances may cause distinctive foot odor in this genetic condition common in East Asia, with topical treatment showing promise.
Health & Sun ProtectionGoogle News — AlbinismNew Global Initiative Aims to Secure Health and Wellbeing for Children with Albinism
The Lancet highlights important efforts to improve health outcomes and support for children with albinism worldwide through comprehensive approaches.
Health & Sun ProtectionJournal of Investigative DermatologyBiologics May Impact Mental Health Outcomes in Hidradenitis Suppurativa Patients
Recent research explores the relationship between biological therapy and mental health in people with hidradenitis suppurativa, a chronic inflammatory skin condition.
Health & Sun ProtectionGoogle News — AlbinismPromising Treatment Could Restore Visual Function in Albinism, Study Shows
Researchers have discovered that L-DOPA treatment may rescue retinal development and improve vision in a mouse model of albinism, offering hope for future therapies.
Health & Sun ProtectionJournal of Investigative DermatologyUnderstanding Skin HPVs and Their Possible Health Effects for People with Albinism
New research explores how common skin viruses interact with immune systems and UV exposure – important insights for the albinism community.
Health & Sun ProtectionJournal of Investigative DermatologyNew Treatment Shows Promise for Atopic Dermatitis Patients with Skin Pigmentation Concerns
Rocatinlimab, targeting the OX40 receptor on T-cells, demonstrates improvement in moderate-to-severe atopic dermatitis in phase 3 trials.
Health & Sun ProtectionJournal of Investigative DermatologyAdvanced Imaging Reveals How Skin Cells Maintain Adhesion Under Stress
New research illuminates how desmoplakin proteins respond to mechanical stress in skin cells, with implications for rare skin conditions including those affecting people with albinism.