Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionOrphanet Journal of Rare DiseasesNovel Alpha 1-Antitrypsin Variant Linked to Early-Onset Liver Disease
Researchers identify a rare genetic variant of Alpha 1-Antitrypsin Deficiency that combines two mutations and shares pathogenic properties affecting liver health.
Health & Sun ProtectionAllAfrica — AlbinismSmart Strategies: How Integrated Health Visits Protect People with Albinism from Malaria
In resource-constrained settings, strategic approaches to malaria prevention offer vital protection for people with albinism who face increased health vulnerabilities.
Health & Sun ProtectionGoogle News — AlbinismAlbinism Treatment Landscape: New Clinical Updates and Emerging Therapies
Recent dermatological research highlights promising advancements in understanding and treating albinism alongside other pigmentation conditions.
Health & Sun ProtectionJournal of Investigative DermatologyJournal of Investigative Dermatology Withdraws Duplicate Research Article
A research article potentially relevant to albinism-related conditions has been withdrawn after being identified as an accidental duplication.
Health & Sun ProtectionPubMed — Albinism ResearchBreakthrough in Reptile Genetics: First Gene-Edited Albino Lizard
Scientists have created the first gene-edited reptile — an albino lizard — marking a significant advance in genetic research with implications for albinism studies.
Health & Sun ProtectionPubMed — Albinism ResearchNew Research Reveals Genetic Patterns of Albinism in Mali
A comprehensive study mapping the genetic landscape of albinism in Mali provides valuable insights into the condition's prevalence and patterns in West Africa.
Health & Sun ProtectionPubMed — Albinism ResearchNew Genetic Mapping Study Reveals 5 Novel Mutations in Genes Associated With OCA
Researchers have developed a new panel of genetic markers for albinism, helping identify previously unknown mutations associated with oculocutaneous albinism.
Health & Sun ProtectionOrphanet Journal of Rare DiseasesStudy Reveals Emotional Impact of Appearance-Affecting Skin Conditions
New systematic review explores the psychological challenges faced by adults with rare genetic skin conditions that affect appearance and quality of life.
Health & Sun ProtectionAllAfrica — AlbinismUnderstanding Health Concerns: Albinism, Diabetes and Other Conditions
A closer look at the relationship between albinism and various health conditions including diabetes, and approaches to comprehensive wellbeing.
Health & Sun ProtectionOrphanet Journal of Rare DiseasesStudy Reveals Critical Gaps in Rare Disease Knowledge Among Chinese Emergency Physicians
New research highlights the urgent need for improved education about rare diseases, including albinism, for emergency medical professionals in China.
Human RightsReuters Health (Albinism via Google News)International Albinism Awareness Day Celebrated Through Powerful Photography
Reuters showcases images from International Albinism Awareness Day celebrations, highlighting community resilience and advocacy efforts worldwide.
Human RightsAllAfrica — AlbinismUganda's Veterinary Professionals Organize Against Licensing Fee Increases
Over 1,200 veterinary professionals from across Uganda have petitioned the government over a significant increase in annual licensing fees.
Human RightsOHCHR — Independent Expert on AlbinismClimate Justice Ruling Could Benefit People with Albinism Worldwide
The International Court of Justice's landmark climate ruling has implications for people with albinism who face increased health risks from climate change.
Education & InclusionJournal of Investigative DermatologyXu Beihong: The Influential Artist Who Bridged Eastern and Western Artistic Traditions
Exploring the legacy of Xu Beihong (1895-1953), a pivotal figure in modern Chinese art who integrated Western techniques with traditional Chinese painting.
Education & InclusionOrphanet Journal of Rare DiseasesBeyond the Screen: How Movies Can Shape Public Understanding of Rare Conditions
New research explores how popular films featuring characters with rare diseases can influence public awareness and understanding of conditions like albinism.
Education & InclusionGoogle News — AlbinismUnderstanding Albinism in Plants: The Science Behind This Rare Botanical Phenomenon
Exploring the fascinating world of plant albinism, its causes, and what makes these unique variegated plants special in both nature and home gardens.
Education & InclusionGoogle News — AlbinismHow Female Students with Albinism Navigated Online Learning During COVID-19
New research examines the unique challenges and experiences of female students with albinism in South Africa and Zimbabwe during pandemic-era remote learning.
Education & InclusionGoogle News — AlbinismThe Rare Beauty of Albino Bass: Understanding These Unique Fish in Montana Waters
A look at the genetic condition causing albinism in bass species, what makes these fish special, and ethical considerations for anglers who encounter them.
Education & InclusionGoogle News — AlbinismBreaking Educational Barriers for Children with Albinism
A new Human Rights Watch report highlights educational challenges and solutions for children with albinism across African countries.
Education & InclusionGoogle News — AlbinismElon University Student Transforms Personal Experience with Albinism into Innovative Research
Niara Legette '26 is conducting groundbreaking research on albinism, using her lived experience to drive academic inquiry at Elon University.