Archive
Health & Sun Protection
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Health & Sun ProtectionJournal of Investigative DermatologyResearch Update: Funding Source Correction for Dengue Vaccine Study
Journal of Investigative Dermatology publishes important correction to acknowledge NIGMS funding in dengue vaccine skin reaction research.
Health & Sun ProtectionJournal of Investigative DermatologyNew Insights into Central Centrifugal Cicatricial Alopecia Affecting Women with Albinism
Recent research provides a deeper understanding of CCCA, a common form of scarring hair loss affecting women of African descent, including those with albinism.
Health & Sun ProtectionJournal of Investigative DermatologyGene Study Reveals New Insights into Hair Loss Condition Affecting Women of African Descent
Research identifies genetic factors in Central Centrifugal Cicatricial Alopecia (CCCA), offering potential pathways for treatment of this common condition.
Health & Sun ProtectionJournal of Investigative DermatologyUnderstanding Neurofibromatosis Type 1: What New Research Reveals About This Genetic Condition
A recent study in the Journal of Investigative Dermatology explores neurofibromatosis type 1, shedding light on its genetic mechanisms and manifestations.
Health & Sun ProtectionAmerican Journal of Human GeneticsNew Study Highlights Genetic Differences in Alzheimer's Disease Across Populations
Multi-ancestry research reveals shared and population-specific genetic effects in Alzheimer's, demonstrating the importance of diverse study participants.
- Health & Sun ProtectionStanding Voice
New Standing Voice survey finds 80 % of Tanzanians with albinism have significant uncorrected sight loss
A new community survey finds that more than 80% of Tanzanians with albinism have significant uncorrected vision impairment, calling for urgent integration of low-vision support into national eye health strategy.
- Health & Sun ProtectionStanding Voice
Cape Town project secures free high-SPF sunscreen for 1,200 children with albinism
A partnership between a Cape Town NGO and the Western Cape Department of Health has delivered free high-SPF sunscreen to over 1,200 children with albinism in public schools.
- Health & Sun ProtectionReuters Health
Study maps critical gap in dermatology access for persons with albinism across East Africa
A new study finds fewer than 15% of persons with albinism across six East African countries have ever seen a dermatologist, mapping a critical gap in preventable skin cancer care.
- Health & Sun ProtectionAssociação Brasil Albinismo
New Brazilian survey maps the everyday needs of people with albinism
A nationwide survey by Associação Brasil Albinismo finds that access to sunscreen, low-vision services, and school accommodations remains deeply uneven across regions.
