Archive
Stories, in full
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Real StoriesGoogle News — AlbinismShaiboy on Afrobeats, albinism, and working twice as hard
Nigerian artist Shaiboy speaks about navigating the music industry with albinism, and what it takes to build a career on his own terms.
Real StoriesGoogle News — AlbinismAderopo Afolabi uses photography to reframe albinism
Nigerian photographer Aderopo Afolabi is using portraiture to challenge how albinism is seen and represented in West Africa.
Human RightsGoogle News — AlbinismNigeria's millions with albinism remain largely invisible
An estimated two million Nigerians live with albinism, yet many face daily discrimination, limited healthcare access, and social exclusion. LEADERSHIP Newspapers reports.
Health & Sun ProtectionGoogle News — AlbinismCRISPR gene editing accidentally triggers albinism in sugarcane
Researchers found that CRISPR/Cas9 editing caused unintended albinism in sugarcane plants by disrupting a pigmentation gene. The finding highlights a precision problem with a widely used genetic tool.
Human RightsGoogle News — AlbinismJune 13: International Albinism Awareness Day observed globally
Each year on June 13, communities around the world mark International Albinism Awareness Day, established by the United Nations in 2015.
Health & Sun ProtectionGoogle News — AlbinismUJ brings free eye care to people with albinism
The University of Johannesburg ran a clinical outreach providing eye examinations and corrective lenses to people with albinism in South Africa.
Human RightsGoogle News — AlbinismNigeria's First Lady calls for albinism inclusion
On World Albinism Awareness Day, Nigeria's First Lady urged protection and inclusion for people with albinism, citing persistent discrimination and unmet needs.
Human RightsGoogle News — AlbinismPeople with albinism in Liberia report government neglect
Community members in Liberia say they lack access to basic health services, sun protection, and legal recognition. The New Dawn Liberia reported their accounts.
Human RightsGoogle News — AlbinismFiji prepares to mark International Albinism Awareness Day
Communities across Fiji are gathering to observe International Albinism Awareness Day on 13 June, bringing visibility to people with albinism in the Pacific region.
Real StoriesGoogle News — AlbinismNigeria hosts its first pageant for people with albinism
A new pageant in Nigeria centres people with albinism in a national conversation about beauty and representation. The event is reported to be the first of its kind in the country.
Myths & FactsGoogle News — AlbinismSkin bleaching is not albinism, doctors clarify
A Ghanaian dermatologist's claim that bleaching causes 'self-induced albinism' has drawn attention — and requires careful correction for the albinism community.
Human RightsGoogle News — AlbinismCalls grow to end discrimination against people with albinism
Advocates across the Pacific are pressing for stronger protections as discrimination against people with albinism remains widespread and largely unaddressed.
Education & InclusionGoogle News — AlbinismSchool ordered to pay after rejecting boarding pupil
A Ugandan school has been ordered to pay fees after refusing a pupil with albinism a place in its boarding section. The case marks a rare accountability moment for disability discrimination in education.
Real StoriesGoogle News — AlbinismDaniella Boima Garrick wins first Miss Albinism Africa
The Sierra Leonean contestant took the inaugural title at a pan-African pageant created to celebrate women with albinism on their own terms.
Human RightsGoogle News — AlbinismUN expert documents albinism challenges across Pakistan
A UN independent expert has identified barriers facing people with albinism in Pakistan, including discrimination, limited healthcare access, and gaps in legal protection.
Health & Sun ProtectionGoogle News — AlbinismPeople with albinism call for united front on skin cancer
Advocates in Nigeria are urging coordinated action between health bodies and the albinism community to address elevated skin cancer risk. The call centres on access, early detection, and sun protection.
Africa FocusGoogle News — AlbinismTwo siblings with albinism missing in Mozambique
A brother and sister with albinism have been missing from Quelimane since November, leaving their community on edge. No arrests have been reported.
Human RightsGoogle News — AlbinismInternational Albinism Awareness Day 2026: what to know
Every year on 13 June, International Albinism Awareness Day marks a moment for the global community to reflect on the rights and dignity of people with albinism.
Health & Sun ProtectionGoogle News — AlbinismGene-edited albino cane toads illuminate natural selection
Researchers created albino cane toads using gene editing to study how pigmentation loss affects survival in the wild. The findings offer new clues about how natural selection operates.
Human RightsGoogle News — AlbinismSouth Africa marks albinism awareness with renewed calls
On International Albinism Awareness Day, organisations across South Africa called for an end to discrimination facing people with albinism in daily life.