Archive
Real Stories
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Finding Self-Acceptance: Jenny Bovard Shares Her Journey with Albinism
The Albinism Life podcast features Jenny Bovard from Canada discussing her path to self-acceptance and experiences living with albinism.
Real StoriesGoogle News — Albinism"It Felt Like A Punishment": Living with Albinism in Tanzania
A deeply personal account of growing up with albinism in Tanzania reveals ongoing challenges despite progress in human rights protections.
Real StoriesReuters Health (Albinism via Google News)From Refugee to Olympian: Spanish Athlete with Albinism Competes for Paris Gold
After fleeing persecution in Mali, an athlete with albinism finds success and Olympic aspirations representing Spain on the international stage.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Artist Fin Shares How She Perceives the World Through Art Despite Visual Impairment
Talented artist Fin discusses how she navigates museums with her long cane and expresses her unique visual perspective through art.
- Real StoriesNOAH — National Organization for Albinism and Hypopigmentation
NOAH 2026 conference brings together 900 people with albinism from 38 countries
The NOAH 2026 conference in Atlanta drew nearly 900 attendees from 38 countries, marking the largest gathering in the organisation's history, with sessions on health, rights, and international advocacy.
