Archive
Real Stories
A record of albinism news, research, and advocacy from trusted sources around the world. Reviewed by a human editor before publication.
Jane Kasweka
Livingstone, Zambia
Delphile Bandha
Livingstone, Zambia
Purity Kashweka
Livingstone, Zambia
Dorcus Siabasimbi
Livingstone, Zambia
Carolina Khaskelis from the United States is visiting Livingstone, Zambia, where she is spending time with members of the local albinism community, including Jane Kasweka, Delphile Bandha, Purity Kashweka, and Dorcus Siabasimbi. Alongside distributing essential sunscreen, Carolina is listening to their stories and learning more about their experiences, challenges, and hopes for the future.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Artist Fin Shares How She Perceives the World Through Art Despite Visual Impairment
Talented artist Fin discusses how she navigates museums with her long cane and expresses her unique visual perspective through art.
Real StoriesGoogle News — AlbinismAfrican Models with Albinism Breaking Barriers and Inspiring Others
Models with albinism across Africa are challenging stereotypes and inspiring others in the community to pursue their dreams despite societal prejudice.
Real StoriesGoogle News — AlbinismComedy Series 'Pretty Blind' Brings Albinism and Partial Sight to the Screen
AMI-tv's new comedy series 'Pretty Blind' features a protagonist with albinism, bringing representation and humor to the lived experience of partial sight.
Real StoriesGoogle News — Albinism"It Felt Like A Punishment": Living with Albinism in Tanzania
A deeply personal account of growing up with albinism in Tanzania reveals ongoing challenges despite progress in human rights protections.
Real StoriesReuters Health (Albinism via Google News)TV Presenter in Burkina Faso Becomes Powerful Role Model for People with Albinism
How a popular television presenter in Burkina Faso is breaking stereotypes and inspiring a generation of people with albinism to pursue their dreams without shame.
Real StoriesGoogle News — AlbinismComedy with Purpose: Jennie Bovard Turns Albinism Experience into Laughter and Awareness
Comedian Jennie Bovard uses her experience with albinism and partial sight to create humor that educates audiences while challenging stereotypes.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Albinism Life: New Podcast Series Celebrates Community Experiences
The Albinism Fellowship UK launches 'Albinism Life', a podcast exploring diverse experiences within the albinism community.
Real StoriesGoogle News — AlbinismSinger, Police Officer, and Netflix Star: Celebrating a Voice Against Albinism Stigma
A remarkable individual with albinism breaks barriers as a musician, law enforcement officer, and now inspiration for a powerful Netflix film highlighting albinism in Africa.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Finding Belonging: Jess Shares Her Journey with Albinism in School
In a moving podcast episode, A-level student Jess discusses social challenges, mental health, and her strong sense of identity as a young person with albinism.
Real StoriesGoogle News — AlbinismThe Guna People of Panama: Indigenous Community Embraces Albinism as Part of Their Identity
How the indigenous Guna people of Panama have integrated albinism into their cultural identity, offering a unique perspective on living with the condition.
Real StoriesReuters Health (Albinism via Google News)From Refugee to Champion: Paralympic Sprinter with Albinism Chases Gold Dreams
How a remarkable athlete with albinism found safety in Spain after fleeing Mali, and is now representing his new country at the highest level of Paralympic sport.
Real StoriesGoogle News — AlbinismKenyan Para Sprinter with Albinism Breaks Barriers on the Track
A Kenyan athlete with albinism is challenging stereotypes and inspiring others through their achievements in Paralympic sports.
Real StoriesReuters Health (Albinism via Google News)Living with Albinism: Elena Rodriguez Shares Her Journey
Elena Rodriguez opens up about her experience living with albinism, highlighting challenges and triumphs in her personal story.
Real StoriesGoogle News — AlbinismLaurens Community Rallies Support for Twins with Ocular Albinism
A South Carolina community comes together through a fundraiser to support young twins with ocular albinism, highlighting local solidarity and awareness.
Real StoriesReuters Health (Albinism via Google News)Beauty Pageant Celebrates and Affirms Dignity of People with Albinism
A special pageant is helping people with albinism reclaim their dignity and challenge stereotypes through celebration of beauty in diversity.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Living Independently with Albinism: Musician Ben Shares His Journey
Ben, a drummer pursuing a professional music degree, opens up about independent living, navigating challenges, and finding humor in daily experiences with albinism.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Teaching with Albinism: Deputy Head Teacher Shares His Inspiring Journey
Adam, a UK deputy head teacher and Paralympian with albinism, discusses his educational career, goalball achievements, and unique classroom insights.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Finding Self-Acceptance and Global Success: Luke's Journey with Albinism
From feeling different to designing cruise ships worldwide, Luke shares his inspiring story of self-acceptance and career success as a person with albinism.
Real StoriesAlbinism Life Podcast (Albinism Fellowship UK)Finding Out Your Baby Has Albinism: One Family's Journey
Jon and Debbie share their emotional journey discovering their daughter Cleo has albinism and how they've empowered her to advocate for herself.
- Real StoriesNOAH — National Organization for Albinism and Hypopigmentation
NOAH 2026 conference brings together 900 people with albinism from 38 countries
The NOAH 2026 conference in Atlanta drew nearly 900 attendees from 38 countries, marking the largest gathering in the organisation's history, with sessions on health, rights, and international advocacy.
