Voices of People with Albinism
Robin Gittens

A Voice · in their own words

Twenty Years Alone, Then a Room Full of People Like Him

“We’re a minority group. All of us have lived through our own version of this. Coming together — what couldn’t we build?”

Robin GittensRobin GittensCanada

Published August 8, 2026

The challenge

Robin grew up in Barbados without ever meeting another person with albinism — not once, in over twenty years. When he finally did, at 35, through an organization called NOAH, he walked in carrying two decades of hope for what that moment might mean.

What helped

He learned that connection doesn’t always look the way you imagine it will — and that disappointment isn’t always a sign something went wrong. Sometimes it just means the expectation was too heavy for one afternoon to carry.

In their words

Robin spent more than twenty years in Barbados without ever meeting another person with albinism. Not one. So when he finally connected with a community in 2018 — at 35 years old, through an organization called NOAH — it wasn’t just a social outing. It was decades of waiting, arriving all at once. Someone he’d met in a Facebook group invited him to a small gathering at a restaurant, just a handful of people connected through the organization. Robin walked in intimidated, and carrying expectations he now admits were probably too big for the moment: real conversation about the things they’d all lived through, a sense of instant recognition, maybe even the start of something — people organizing together, using their shared experience to push for change. “We’re a minority group,” he says. “All of us have lived through our own version of this. Coming together — what couldn’t we build?” What he found instead was simpler — people hanging out, taking photos, enjoying an afternoon together. Nothing wrong with it. Just not what he’d pictured. He left disappointed, and he’s honest about where that disappointment came from: not from anyone else, but from the weight of hope he’d carried in alone. He never went back to another gathering. Not out of anger — just because the space between what he’d hoped for and what he found stayed with him, quietly, for years.​​​​​​​​​​​​​​​​